| AUTISM..... Tell me anything!!!!!
Posted: 8/28/2005 3:22:26 AM | Slowly been growing out of it. Sorry I don't think I should post this late at nite. Can we say spell check.
Love your babies no matter what and they will grow to be loving parents too. and so on and so on. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 8/28/2005 2:27:42 PM | | My son was diagnosed with autism at age 4. He is on medication to help him sleep and calm him down. It has helped him tremendously. He attends a private christian school and gets one on one help. He also has a speech and occupational therapist that comes to our home once a week. He is lucky in the fact that he talks very good and can communicate well. He still does the slapping thing sometimes but only to his family. He is improving every day. He loves to go out and eat and go shopping. He still draws attention sometimes by jabbering or covering up his face in public. He dont like loud noises at all. I try to do a lot of different activities with him to get him used to things. His memory is amazing and he talks about things that happened several years ago. He's 10 now. He never forgets anything. I attend workshops every summer at our local college to find out the latest information on autism. This is very helpful to me because I learn new ways and ideas of dealing with this. Parents of autistic children need to stay in contact with each other and help each other out. You can always use some good advice. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 8/28/2005 2:44:32 PM | | my eldest son has aspergers syndrome which is mild autism n nothing can prepare ya for it and every child is diff you learn to adjust to the childs needs and demands there are tough times but there are rewarding times also and autisic children are extremly bright my ten year old is a pc wizard and very clever n also very loving , i make sure i reward him for the good behaviour . | |
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| AUTISM..... Tell me anything!!!!!
Posted: 3/27/2006 9:44:39 AM | | first of all , keep reading , everyday is different, on the posative, although you say low functioning she is still young, and probably high functioning in an area you havent found yet. Are you involved with early intervention services,great help , consider daycare with an aide, another great help, special services at home provides funding, as for safety issues, my son now 8 is making progress but still 8 eyes needed at all times. a chain lock very high on your door for starters, maybe even connected to an alarm, a latch on the outside of the bedroom door for when she is sleeping, trust me its not cruel, cruel is a 3 year old wandering the streets at night, use a stroller at all times , i still use one when needed or we use a leash( sounds bad i know) connected to the belt loop of the pants while walking does wonders. who cares if people stare, their just ignorant. Safety first. look into using hand over hand techniques, maybe pecs, and picture boards, they do work, token systems and motivators do wonders, it gets easier in some areas and harder in others and is a constant effort but it is well worth it just continue to educate yourself and use whatever learning strategies that work for her. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 4/13/2006 1:19:41 PM | realizing i am way new to the board, but i have a 7 y/o boy that was diagnosed with Aspergers as well. first and foremost make sure you KNOW that YOU are THE ONLY TRUE ADVOCATE YOUR CHILD HAS. so much of what i ahve read is like deja vue to me. He is a great kid.. well behaved but has times where he just has a melt down. Normaly it will be when there is ALOT of activity goign on around him, that is loud. even jsut loud noises are enough to set the wheels in motion. he gets bored very quickly and when he is bored, that also set the wheels in motion.
Like everyone else... i have read alot on this and i still feel so lost when it comes to figureing out what exactly is going on. the school district has been absolutly wonderfull in accomidating him, they even went as far to giveing him a
" para-teacher" to be with him and keep him on task while in school. he is in regular 1st grade, but like alot of other kids he goes to speach.
i am so far very much enjoying this site as a whole.. so much other information then jsut " dateing" | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/8/2007 2:46:37 PM | hi i work with kids with sp needs a lot have varin degrees of autism ,i hope this advice will help.slow down your tryin to do to many things,kids with autism cant handle to many changes try i think at a time and every day do the same thing till you have achieved this it may take monthe but you must carry on dnt try and do anthin else till you have achieved this try to have a routine as they like to have routine as much as possible and pecks piks and timetable this will also help her to understand whats goin in the day and whats expected of her .this may help with her hittin as she may not feel so up in the air ,kids with autism also realy only understand 1 word so dont say things like stop slappin me thats naughty or bad try just to say stop or no this may help if u say this every time so she will become more aware or make a red stop card with a hand up and reinforce with that wen you say stop .i hope this helps you with your daughter and if i can help any more please ask good luck
samxx | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/8/2007 3:01:11 PM | One of the things I have learned about autistic people is that they can have a tactile issue... meaning they don't like being touched... it can almost hurt them in a way. Their perceptions of touch and feel can be way off. And I'm just offering this from someone who is working with an adult with autisum. Possibly a reason why your daughter may be slapping at you.
Keep reading on the subject to learn as much as you can... my heart goes out to all of you and your children who are being effected by this disorder. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/8/2007 3:13:51 PM | understand that my child's slapping is her communication but I am also trying to get her to do something else rather than slapping me, to communicate because she is fairly strong and it hurts when she slaps
I used to teach autistic children...
Even if she can speak you might consider some sign language for her..I might be that when she is in a state it is difficult for her to express..They have found that even adding say 20 signs in sign language makes an improvement...Somehow it is just easier to access when upset. Most people learn signs for the things she might want usually (to go out, juice,,milk,,doll,,bathroom,, hungry etc.) and some emotions.
I have read that some feel nutrition can make a huge difference (additives n sugar) There is much reading on the web about this. I have seen this make a huge difference.
Take what the Dr's have told you with a grain of salt ,,alot of people are told "low functioning' and it turns out not to be so. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/8/2007 3:15:35 PM | | Your profile is gone however my mothers friend is a HUGE autism advocate for canada as she has two children with autism and a rare case of boy and girl. If you would like any information please email me and I can connect you with her! | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/8/2007 5:36:06 PM | yes my son has PDD-NOS wich is mild autism with super extra sensory issues. I find that some children like mine HATE loud nioses and ppl in thier personal space. When he was 2-3 he had almost zero speech so I took a IT TAKES 2 TO TALK course wich taught me sign language and how to conecct with him.
It took 6 months for him to flower.. and open up but his tantrums went down by half. He got 20 signs in one week. I taught them to my whole family.. and it was the best thing I ever could have done. Now that my son is almost 6 hes a total chatterbox!!
It took from age 2 to age 5 to finally get funding... get consultants...and to see miraculous improvement from my son. It takes TONS OF PATIENCE one on one time.. OBSERVE...WAIT.. AND LISTEN. Dont talk for your child.. let them either sign.. show or lead you to what they want.
Also observe them every day for a week. The things that set them off. Like nioses... lights.. smell textures.. tastes... touch.. ect... and write them down. Once you know what sets them off you can learn to aviod certain situations and how to adjust your life to aviod blowouts... and HITTING AND SLAPPING/ BITING.
autism canada is a wonderland of help for you.. I suggest going to a child center.. or a health unit or a child deveopment center. I was there literally every week soaking up as much info as i could and meeting and going to get togthers.
good luck to you.. its a long road ahead. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/9/2007 4:27:17 AM | I would just like to add my bit here, saw your post and just wanted to reassure you if i can. Iv worked in special schools for a good few years now and seen children with autistic specturm disorder move throughout the school from early years through primary education up to secondary and on to college.
These kids are hugely capable of coping with lifes demands and reaching their full potential. Iv seen many success cases and what really makes me feel good is when you bump into one of the kids you used to work with in the classroom, now left school and enjoying a career or studying in further education. I bumped into a crowd of the kids i used to work with a few years ago at a party, they were buying me drinks, having a laugh, telling me all the gossip about other ex classmates, boyfriends etc, but still calling me miss which was quite funny.
I know its not easy when your child is first diagnosed, and there are different levels of autistic spectrum disorder, some needing a little more help than others, but believe me with the right support you and your little one will get through it.
Good luck | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/10/2007 9:56:23 AM | Hi just joined this site and was browsing through the messages posted.I have a 9 year old son who is on the autistic spectrum.I spent too many years focusing on what he couldn't do instead of what he could even if it's "hello Mommy" instead of a slap.
It's taken me a long time to realise what a lovely happy child I have and I wouldn't be without him.  | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/10/2007 11:22:42 AM | Kingstongirl,
If you do a search in your area you might be able to hook up with an autistic parents group.....I found it was very beneficial.
As far as toileting is concerned it is important to note autistic children at times need more time....if you know what I mean.....any pressuring, scolding can turn into phobia behaviors.....
Discipline....you have two choices you can ignore it or consistently reinforce proper behavior -remember any hitting, yelling etc....will be mimicked......I chose to ignore
At times an autistic child whether from a traumatic birth etc.... does not have the proper stop mechanism in his/her brain....there is no off.....I have found certain pediatricians have prescribed ritalin and it was successfully.....
I do believe with proper intervention young lady you will be amazed how well your child will learn when you find the specific/proper learning techniques that work. Some use the computer as a learning tool.....printing out a book with pictures and large words for communication...... I find if a parent can utilize the tools that work (the more senses the better) along with constructive choices, and giving positive reenforcement to the child when a task is completed the child excels.
At times inverting the color on the computer for the child works great.....for instance....instead of black on white.....have white on black.....etc....... takes time......
Loving your child up is so important........so for emergency issues......pictures.....books.....visuals, audio....etc..... use it all young lady and your child will excel....
Learning the forms of relaxation....deep joint compression......over stim....brushing....etc...
Some parents find sign language beneficial......has your child be tested to hearing loss etc......
At times it is important to get in their face.....:)) Work on their strengths too.....important....schools want to balance a child... with autistic children this might not be the best..... :))
I use to make up videos.....lol....on certain subjects for learning....... you might be able to do this with certain important issues that you have....... keep things simple......:)))
Talking about your child in front of them with other people......be respectful as they know what you are saying.....
Sadly, a great deal of behaviors come from their inability to communicate........praise your child......structure their day......important......love them up....
Wishing you the best...
Bryan 0:)
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| AUTISM..... Tell me anything!!!!!
Posted: 2/10/2007 5:42:46 PM | | my son is 7 with severe autism/mentally retaurded,adhd,sleep disorder.he started early intervention at 2.....public schools have been a challenge for him........hippo therapy is great,and occupational,,music,physical.but he cannot speak.......its very hard doing it alone so feel free to ask me anything to ok? | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/10/2007 5:52:02 PM | To my son with autism
so sweet and unique,
praying some day you will speak
i watch you grow and smile at me
trying to figure out ,how life would be.
you have autism,which you struggle with every day
but mommy is trying and will continue to pray.
you look so happy with smiles on your face.
if i could take away the confusion ,i would take your place.
i love you son more than i can say.
your love is so so real in every way.
your progress is slow,and sometimes very hard to understand.
but no matter what i will hold your hand.
i reach for the stars every second i breath in a day.
my dear boy,i am so proud of you in every way.
you look at everything so pure and real.
i wish i could undertand how you feel.
please talk to me sweetie,just let me know.
it will happen even if its slow.
god bless my angel ,be with him today.
as i will continue to pray... melissa
Favorite Quote: | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/10/2007 6:30:48 PM | | There has been studies done and it is believed that there is a link between autism and the measles measles, mumps, rubella vaccine, given to children in enfanthood. It is more prevelent in boys though, are u sure it is autism? Have you saught a second opinion? How old is she? | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/11/2007 4:06:02 PM | First of all KingstonGirl80...please, please always remember to put you dear, sweet child first.
Your child is a person first and always- the autism is but a part (albeit a significant part) of who they are...That little bundle of Love you gave birth to is always going to be that bundle of Love somewhere inside of them!
Now- on to somechat about autism...Let me introduce myself...I am an educational assistant (nine years now) and I am also what would be referred to as an Inclusion Support Facilitator in a Recreation and Educational capacity. I am presently seven months into a messy separation from my Ex-fiance (who I was with for nine years as well) We separated one month prior to our second son being born. He is now 6 months old and appears to be rocking and rolling all the way. I am in the midst of a very difficult and frustrating dispute to gain access and shared custody of my Boys. At this point I will tell you about my oldest Son. He is just overtwo and a half years old. He is absolutely wonderful and empathetic, and playful and the list goes on...However...He is not really speaking just yet (at all), has limited and aversive eye contact, only sporadic initiation of social play, and sometimes seems to be totally disengaged with external stimuli. A referral has just been made to have Him assessed for High Functioning Autism. His mother and I (as usual) are at odds over this as I do see some classical presentation of autistic characteristics, and she does not- the mind will see what it wants to see.
I tell you this because now, all of a sudden my world has been turned upside down...and as a result I have set the wheels of education back in motion after a long period of becoming complacent about the little information I did have on autism. You see...regardless of what you may (or hopefully- may not) hear is that autism is the end of the world and hope. This is absolutely untrue!!! In my years of working with wonderful children who have ASD, I have learned that this disorder would be more accurately labelled differently-abled as opposed to disabled. Not to minimize the difficulties and challenges that this encompasses; but people who have autism are trying to make sense of a world that is not ordered according to their rules of logic and comprehension. People who are autistic experience the world as if it were a puzzle with some or many of the pieces missing- yet still treying to come to terms with what they see and experience. Many of the people who I work with who are autistic are so unique and such major contributors to the quality of life being experienced by those who have the good fortune to encounter their special perspective on life that I can hardly justify calling this a disability.
There are many great resources in place (both online, governmentally- depending on where you live, educationally, and recreationally. You have to become your Child's most strong and adamant advocate now...be strong and always pursue what is in the best interest of your Child- they need you to help make sense of a very complicated and incongruous world!
I can give you the web page addies of some local resources where I am at- they are excellent and very current...here are some of them:
http://www.autismcentre.ns.ca/
http://www.autism.net/
http://www.autismsocietycanada.ca/
http://www.thegraycenter.org/
http://www.autismawarenesscentre.org/
Please remember that when you feel overwhelmed and frustrated that your little one needs you to remain calm, consistent, genuine, engaging, and loving- even when they don't seem so loveable!
Some great authors who you may want to read up on who are superb are:
http://www.ont-autism.uoguelph.ca/books-by-ASD-authors.html
It is very important for you to network socially in your local and online community- there are many, many ways to effectively help your Child manage their behaviour. Not the least of which (especially for someone who is autistic) is model your own desireable behaviour and doing something called "Living Out Loud"- essentially do a running play by play commentary of all the little things you do when you are around your Child- keep it simple and concret. Always watch out for non literal use of language- this may be confusing to your child with autism! Also- you may want to try some other strategies such as a method of scripting called social stories, and/or the use of PECS (Picture Exchange Communication System) a visual scheduler- people who are autistic will understand concrete visual expressions much better when language is not the sole means of communicating- use language ina simplistic and respectful way that positively and logically reinforces what the visual cue is showing.
Anyway...I'm getting some writer's cramps so I will go now...maybe we will chat sometime...all the best with your wonderful Child! Stay strong and keep the hope.
MH | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/11/2007 7:48:41 PM | [a chain lock very high on your door for starters, maybe even connected to an alarm, a latch on the outside of the bedroom door for when she is sleeping, trust me its not cruel, cruel is a 3 year old wandering the streets at night]
i almost lost my kids due too i had a lock... just a normal everyday bathroon push lock backward on their door... and only used it at nights after they were long asleep cause of the same reason you stated but social services was called by someone and they told me it didnt matter i had to take it off... yes i have a chain lock on my door also but i cant trust that 100%.... also every morning i have gotten up extra early(its gunna kill me soon gettin up at 5 am like this) and my kids have both already been up for god knows how long and the locks on my cupboards n fridge dont matter they get threw them and they have everything all over my house every morning then i got the social workers now complaining that my house isnt clean enuf for their likings cause i have been falling behind cause of all this extra work... and all the appointments for both my kids there just isnt enuf time.... is there like some sort of article or book or anything even a person i could talk to that could explain this to my workers so they get off my ass about this and i can make my kids safe in my own home again? does anyone know it would be greatly appriciated.... cause this is riddiculus...... they freaked when they were told i put duct tape on my daughters diapers to hold them on also.... its not touching her skin or harming her in anyway....its just so she stops takin it off.... and also i put one peice PJ's on her backwards and its all to stop her from smearing her feesies... she has always dont it and this is the only way to stop it... she eats it and isnt that worse?.... i had our Behavorial Interventionist talk to my workers about the tape and they are iffy on it but let it pass but they still wont even listen to me about the doors....
anyone got any advise on this... sorry i know this isnt my forum strand but was just wondering?
thank you
Dwan | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/11/2007 8:56:35 PM | An announcement on a recent ''Paul Harvey'' broadcast...
Somewhere in the UK.. they are developeing what is believed to be a cure for severe cases of autism.. Still in the experimental, developemental stage..
It may have the potential of complete reversal in as few as 4 weeks !!!
I believe Paul Harveys web site is archived..
It was on his daily program sometime this past week........ | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/11/2007 10:01:51 PM | Eddy, I did a quick search on Paul Harvey's site and found one on diagnosis rates being touted as 1 in 150 but had no luck on the "cure". Has anyone heard this broadcast? I'd love to hear it!
@ DWAN4_20 I too have an autistic child (13yrs) and he went through stages and at the running stage (which was about 4 yrs and a million gray hairs on my X) I put a deadbolt system on the main door that was keyed from both sides...Not sure if it was even legal but he didn't disappear down the street while we were sleeping anymore! We had lost him a few times and it was not a pleasant thing!! Stay strong and remember that YOU need rest and if it means they get to roam a bit in the comfort of your home or their room so be it! We had the luxury of Walt Disney Movies for time outs and that was a saving grace for our sanity! There is help out there and social services is only one means of finding resources for help!! STAY STRONG!
To each and all of us that are the proud parents of an autistic child
 I know that I have been shown a side of humanity that cares not for commercialism, could care less about religion, has very little social issues (or clothes sometimes  ) ! It has taught Me a lot about our society and how we as a society have put large emphasis on materialistic needs that really aren't necessary. That in itself was a blessing that only parents of special children may receive with our special child. I love my son and he loves me and we will do the best we can to live life to the fullest! Although he may never be able to tell me he loves me I see his eyes light up at times when I pick him up to spend time with Dad and that is all I need to remind me that we are FAMILY! Times raising them can be incredibly difficult but bring some of the most memorable moments and greatest points of laughter.....God Bless!! | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/12/2007 9:47:52 AM | i have door alarms
and use locks on screen doors.go to the police with a picture and description of your child.pass out things to the neighbors. | |
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| AUTISM..... Tell me anything!!!!!
Posted: 2/23/2007 7:05:44 AM | All the Money in the World
Listen to audio clip (mp3, 880K)
Watchin' you standing at the edge of your life
I think about everything you've been through
Can't say I don't worry, 'cause I love you so much
And I know what this cold hearted world could do to you
If I could have known before
how this would all play out
I'd have played my cards differently
So things would be easier now
If I had all the money in the world
and nothing to give you but time
And the world were laid at my feet
Things might have been better
But all I have are these arms to hold you
And a promise to love you forever
I wish it were more
I'm praying it will be enough
So many compromises, so much wasted time
Cursing the darkness that held us so long
So many choices, each one had its price
You had to pay for each time we were wrong
My lessons came far too late
To make all of this right
I can't tell you how sorry I am
When I see how hard you have to fight | |
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| AUTISM..... Tell me anything!!!!!
Posted: 3/28/2007 4:40:00 PM | | I am a specialist for kids with autism...if you want real results look into the biomedic treatments...look at www.recoveryvideos.com...look into methyl B12 shots and chelation ...get a DAN doctor to help you with this...you wont be disappointed...trust me...the results are amazin!! | |
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