| Any single parents of disabled children??
Posted: 8/2/2007 1:19:19 AM | Oh yes, I have two girls, who are 9 and turning 11. My 9 year old has anger management issues dealing with her sisters disability and the messy separation/divorce we went through. My 11 yr old is borderline for Aspergers, she has anxiety, some depression, behavioural problems, socialization issues, a learning disability and adhd: meds ritalin, going to see if company will cover Sertra (or something like that) as it targets anxiety etc as well as the adhd. She is going to be attending a special school for kids with behavioural and emotional issues starting in september. I fought long and hard since she was 5 to get her a psychiatrist to look her over and recommend the right cource of medications, I got her into play therapy and they worked on feelings and expressings ones emotions, bla bla bla . SO I have my own social worker , my 11 yr old has her own social worker, and a familiy worker, plus CAS is involved to make sure she gets on the right track. I hate CAS I cringe every time I see a home visit booked. Anyway off topic. They go see their dad about once every 6 - 8 weeks or so, or when they ask or tell me they want to go see him. sometimes I will suggest it so I can get a break!!! I have sole custody as dad is a disinterested one and I had to go to court to get childsupport etc.. blah blah blah. Anyway enough of that. I have been separated since april 2000 and have had two boyfriends if you can call them that. They didn't last long, couldn't cope with the girls issues let alone mine. So it'
s been me and my girls for the last 5 yrs single, hehehh.
Keep looking up.
Julie | |
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| Any single parents of disabled children??
Posted: 8/2/2007 10:45:47 AM | Hi
I have 2 boys, the 13 yr old has Aspergers syndrome, ADHD, epilepsy and is now undergoing tests re diabetes. The 15 year old has ADD. The hardest thing about the dating game is finding someone who won't be scared off by it all, but who understands that I'm not looking for a daddy for them, as they have one - just a buddy..And that I'm actually still a lady in my own right not just a mummy!
I'm not giving up hope though, my prince will come and I will have my fairytale......
Keep your chin up, you are all doing a fabulous job with your children and hopefully someone someday will come along. | |
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| Any single parents of disabled children??
Posted: 9/4/2007 8:23:20 AM | I Have A Boy Of 13 who has Special Needs, he has Learning Difficulties, Hypertonia, Gross & Fine Motor skills Delay , Aspergers Dyspraxia, & Bad behavioral Problem
I look after him alone & on my own have don for 11 years | |
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| Any single parents of disabled children??
Posted: 9/4/2007 12:29:26 PM | My son has just turned 10 yrs old, entered 5th grade in a new school, and until he gets back into a routine, there will be days ( and nights ) of extreme mood swings. He was born with a genetic disorder; 22Q. Along with that, he has Sensory Integration difficulties, Autism Spectrum Disorder, Hearing Loss - amplified in right ear only, Non-Verbal Learning Disorder - he does not understand social cues making school a minefield of his peers' practical jokes, he has difficulty sleeping - often sleepwalking, sometimes cannot feel an injury but then over reacts to a small scratch, he catches every cold, every sniffle and it takes him longer to get back on his feet.
I'm probably forgetting a few things - sleep deprivation will do that...
I'm constantly doing paperwork for his medical or financial benefits ( love those forms that ask - will this condition improve in the next six months ? LOL ! ) , his IEP or just trying to get him through a school day. Each morning is a challenge starting with his clothes - even though he chose them the night before. Today they are too bright, too tight, too itchy, too something, so after 5 to 10 changes later, we are ready for socks and shoes....after 3 to 8 pairs of socks, we are ready for his orthotic sneakers...then we tie them...by this point I usually just tie them because he needs to eat before his van comes...some days, I drive him because he hasn't eaten anything. Then, heaven forbid, if some thing or one is LOUD near him, he is a WRECK ! sigh.... Now that's an extreme example; we have days where he's up and out like nothing's ever bothered him - and then I get suspicious 
My husband died when my son was 14 months old. I never planned on doing this by myself and I have changed my career plans along the way. Being a Mom is great  and being my son's advocate is hard work, too  but after all the volunteering in the classrooms, I'm looking forward to becoming an Elementary Science Teacher     
I love having an integrated classroom because SpEd kids will keep asking questions with just a little prompting and until they are satisfied with the answers they get, they won't let up !
Whenever I think it's just too much somedays, I get in the car, alone, take a little drive, crank up the music ... and scream my head off until I'm laughing at myself  Works for me | |
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| Any single parents of disabled children??
Posted: 9/4/2007 2:52:34 PM | Hya my name is Anna
I have two children with a learning disabilities and with kidney probs its hard work. but I have found that a disability can have a positve out look. Basically very capable individuals. My children are out of the trauma of gang culture now and into sports, school, articulate is the word they love art and one day i no will become hi achievers. My children look normal which to the public eye can be very strange especially when they behave abnormally, quite funny really as Im not answerable to a sole and I love my kids wouldnt change them for the world. | |
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| Any single parents of disabled children??
Posted: 9/4/2007 6:33:07 PM | Hi there,
I just wanted to let you know I feel for you. I have a 13 year old neice with CP and my sisiter has been a single mom since my neice was 7 years old. It's been tough, but my sister is the strongest person I know. I would have broken down and went nutts years ago with what she has been going through. School/daycare issues all the time, which leads to employment issues, of couse medical problems/bills/ OMG and dating...I can't even go there. Although she did marry a very nice guy when my neice was only 2 who still consider's her his daughter even though my sister and him divorced 6 years ago.
Wow, if you would like to get her info to chat with her let me know!
 | |
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| Any single parents of disabled children??
Posted: 9/4/2007 6:47:16 PM | OP: FYI just wanted to let you know my oldest son was born with Angelman Syndrome. 
He was diagnosed when he was only 2 yrs. old and he will be 17 yrs. old this Friday!!! WOW time has flown by. A rollercoaster ride over the years but oh the smiles, hugs, and laughter have made it worth every second. 
If you ever have any questions or need a shoulder...feel free to contact me.
Best of luck and many blessings to you and your "angel." | |
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| Any single parents of disabled children??
Posted: 9/4/2007 9:19:45 PM | | It's sad to have a child(ren) with disabilities but you seem to make the most of it!Good for you.Keep loving your daughter more and more everyday and I'm sure she thanks you in her own way.I have a son with many mental health issues and it's very hard but I keep pushing to be the best I can for him and teach him all I know.I am also raising him without his dad who has no clue he's disabled because he wouldn't care.Anyways,keep up the good work and don't let any negativity on the mothers part put you down...you have a wonderful child so I'm sure that won't be hard.Keep smiling! | |
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| Any single parents of disabled children??
Posted: 9/5/2007 7:04:07 AM | | I am a single parent of a child who was diagnosed with moderate severe autism he is now seven soon to eight and his dad is in his life as much as he can be which is good but he cant deal with the behavioural issues that go along with my high needs child. John it doesn't matter what disability it is its a hard situation all around my son doesnt want to see his dad at all. As probably yours soon will be the same way. I wish you the best of luck and take care of yourself for your little girl. | |
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| Any single parents of disabled children??
Posted: 9/5/2007 12:35:25 PM | Hiya Parents ........
I have a son who was born with a EYE condition called NASTIMUGS
It runs IN the blood line on my moms side.In Most case its boys ,and by the age 14 it gets BAD."BLIND!!!!!!!!"
Well I have a son who has had some ruff times with his eyes over the yrs.
He strated school waering glasses but kids PICKED AND PICKED to were he would not wear them again. I was told that it really would not matter much if he did were his glasses ,That it would not help his eyes get any better. So over the yrs hes Done as much as any boy could do 100% boy!!!.. I never told him HE COULD NOT DO IT. Id let him prove me WRONG. Well as of Sep 4th he went to his eye doctor .Hes now 16 and he was won'ting very very bad to start driving. WELL he was told yesterday IT WILL NEVER HAPPEN. Hes 100% heart broken !!!!!!!!! So what can I do....??? His dad has told him thay will go for a 2nd check but I just don't know. Hes a Great at drawing and won'ts to be a tatto artis....Im scared it may all be SHOOT TOO....H**LL.....
PLEASE HELP ANY INFO ?????????????????????????????Heart borken MOM | |
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| Any single parents of disabled children??
Posted: 6/18/2008 8:15:14 PM | I have a wonderfully cool 18 year old daughter who is globally developmentally delayed, and as a single parent it has been hard there are no dating sites for people like us, and we almost always scare away potential mates because of our kids...hey its the other persons loss if they don't get to know our angels!  | |
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| Any single parents of disabled children??
Posted: 6/19/2008 8:06:49 PM | i have a child not sure if you call him disabled or not hes autistic i still am working on knowing more about autism. he knows im there and he gives me big hugs and i love the fact hes here in this world right now.i wouldnt know what to do with out my boys i have 2 ages 10 & 7 maria
makes me sad that he has autism for the longest time i blamed myself, but then as he got a little older that changed . | |
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| Any single parents of disabled children??
Posted: 6/19/2008 8:07:18 PM | i have a child not sure if you call him disabled or not hes autistic i still am working on knowing more about autism. he knows im there and he gives me big hugs and i love the fact hes here in this world right now.i wouldnt know what to do with out my boys i have 2 ages 10 & 7 maria
makes me sad that he has autism for the longest time i blamed myself, but then as he got a little older that changed . | |
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SJC25
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Joined: 2/5/2008
Msg: 90 | |
| Any single parents of disabled children??
Posted: 6/20/2008 8:52:39 AM | I have two children. My son is 9 and has Asperger's Syndrome, ADHD, and anxiety disorder. He is a great kid, has an off-the-wall sense of humor, and is friends with everyone. He also has no clue when it comes to "social cues", can't concentrate to save his life, and worries about things such as all the police men going on vacation on the same day.
My daughter is 6 and has moderate autism. She LOVES everybody, can do second grade math, and has the ability to make anyone smile. She also has a need to routine, has the language skills of an 18 month old, and is literally fearless.
As you can see, I tend to focus 0n what my kids CAN do before I think about what they can't do.
And yes, my kids disablities have impacted my dating life, but you know what? That's ok. Someday the right guy is going to come along. | |
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| Any single parents of disabled children??
Posted: 6/30/2008 10:30:01 AM | I just read what you put in the thread about you thanking god that you have a healthy child.
Just because a child has a disability does NOT mean that the child is not healthy. That statement made me very upset that you would put that in there. My son may be disabled, but he is a very healthy and happy child. | |
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| Any single parents of disabled children??
Posted: 10/31/2008 4:03:03 PM | | Hi, my name is Shelly and I was reading some of the post here. I find it very encouraging to hear I am not alone in having a child with a disability. My son is 7 years old and he was dignosed with Asperger's Syndrome. I have been looking everywhere to find out info so I can help him in anyway possible. His father passed away 2 1/2 years ago so I contributed all his problems to that trama. I feel like a bad mom for not knowing. I am determined to give him all the love and support he deserves and to find all the help possible. He is such a sweet child, I just wish the world could look beyond his disability. Good luck, to all the parents and their beautiful children. | |
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| Any single parents of disabled children??
Posted: 11/1/2008 11:25:51 AM | I am a 25 year old single mom to a 3 year old son. We have been through TONS of health problems since he was born. I went from pre-eclampsia into HELLP syndrome (the most severe form of it) and had to have an emergency c-section 5weeks before my due date. My son didn't have many problems in the NICU just failure to thrive and had trouble learning to suck/swallow. After that it has been downhill, this is a list of everything we have been through as far as I can remember:
-failure to thrive
-learning to suck/swallow
-was on apnea monitor
-GERD
-chorea syndrome (developed due to being on Reglan and Axid for over a year)
-had a problem with a part of his skull being flat so he had to wear a STARband helmet (cant remember the name of it lol)
-was diagnosed of having a developmental delay very severe was over a year delayed
-later diagnosed with an extremely rare chromosome abnormality on the strands of the 13 chromosome (we have no idea of anyone in the world with this same diagnosis)
-still have failure to thrive
-minor heart murmur
-recurring ear infections which prompted tubes put in ears (tentative removal date is 4/09)
-speech delay has prompted doctors to look at his mouth for possible VPI- velopharyngeal insufficiency
-ADHD (severe)
-possible bipolar (just too young to full diagnose)
We now have him enrolled with the PPCD program (preK program for children with disabilities) with our local school district and he is finally learning to eat more breakfast foods (table food instead of baby food-thanks free school meals lol). Even though his speech is so delayed he is smart enough to know his entire alphabet and numbers 1-10 at the young age of 3. I love my son more then life itself and even though he has as many problems as he has I would not change him for anything in the world! I know that God made a man out there that will be perfect for us and he will come into our lives when the time is right. I wish I knew when that time would be but until then I hope to at least meet some great single parents out there and some nice single men lol!
Charlene | |
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| Any single parents of disabled children??
Posted: 11/1/2008 2:19:59 PM | | I have 5 children 9-20. My 13year old has spinabifida/hrydrocycphlus. He does pretty good now, 28 surgeries later. however the early years were hit and miss. I have used alot of alternitive methods that have helped alot. I also took him to see an amish irradologist(i spell horriable sorry) anyway he was helpful. I can send you alot of info- to you, go to my page so I can email you. cranberry is wonderful-so is a garlic supplament-tuna is high protien an is helpful once a week-fletcher castora for bowels, mix with alittle dr pepper-combined with senakot-s is very effective. My son couldn't take anything else, it all hurt his belly. We just ordered our wheelchair this year 08, he wears leg braces and thank god he has always managed to get wherever he wanted. We are now considering the mace-monte to get him more independent. I have been divorced since he was born 13years and with the help of my loving family and his older sibling we make it. Good luck to you- hope to hear from you soon-a child is always a gift from god and know that you were choosen to be a mommy with a special child! I know I am. | |
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| Any single parents of disabled children??
Posted: 11/2/2008 10:16:43 AM | First, you are to be commended for taking care of your special angel. Something many women and men do because they feel so much love for their children, no matter if there is a challenge in that child's life or not. I'm an older, single mother of an adult young man with autism. I never say Kevin is autistic-because he's so much more than his lot in life-I don't describe anyone by the worst thing that has happened to them.
It does my heart good to see so many of you younger people take responsibility, not because you have to (some ignorant woman once told me to institutionalize Kevin so I could live my own life)...but because you have such a loving heart. Any of you who have written on this forum would make a wonderful mate for any of the rest of you-because you aren't living a totally selfish lifestyle, and you wouldn't give up and run at the first bump in the road.
My wish is for a bright future for all of your children, and for you. | |
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| Any single parents of disabled children??
Posted: 11/5/2008 5:30:27 AM | | Yep. I have a nine year old son who is severely autistic. Therapy has helped some but there is not a single person who would mistake him for "normal". Tried all the typical mediations and it seems that nothing other than plain old repetition and love makes any headway to dealing with his problems. Which tends to drive dates away because he hand-flaps, hums, babbles and does not respect personal space well. Freaks people right out. SO I will just stick to email relatioships so I can run and save him from his daring-do. | |
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| Any single parents of disabled children??
Posted: 11/5/2008 5:06:16 PM | | I have two boys, and the oldest (12yo), has multiple disabilities ie; epilepsy,SOME autistic tendencies,klienfeld syndrome,delayed speech & learning, he was also fully mobile...... It's been a challenge and no mistake about that! 3yrs ago, he got away from a person I had careing for him, got on his pushbike & was promptly hit by a car....... he is now classified as 'Aquired brain injury with spastic quadraplegia'.... as well as all of the existing problems. Talk about a steep learning curve for me!! The mother doesn't want anything to do with either boy...... out of sight, out of mind....... her loss. I didnt ever entertain the idea of puting him into fulltime care, even though I dont have a support base to speak of. It's now got to the stage where I'm comfortable with-in the four walls of my home, and even with limited respite, I dont take advantage of it to go anywhere. The one thing that makes it all worthwhile, is when I put him to bed & he says 'I luv u heaps dad' | |
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| Any single parents of disabled children??
Posted: 11/5/2008 6:48:27 PM | | I have a daughter that has Metachromatic Leukodystrophy. She was normal at one time, where she was walking and talking. Now she's not able to do anything. She is on a feeding tube. And everything has changed so much. She takes all my time so I'm not able to do much of anything. But she is my life though and I love her so much. When she smiles, it lights up my day. The only thing that makes me mad about her condition is that the us has a study going on for her disease and the us had to put it on hold, because there wasn't enough history on the disease. And when the us get the history and put the study back on then it will not help my daughter. She is to far progressed in the disease. So all the doctors can do is make her comfortable for the rest of her life. She is a year old and very loving little girl. | |
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| Any single parents of disabled children??
Posted: 11/6/2008 3:38:17 AM | I really hope that women have not sunk to a new all time low of now not just blaming their children, but now their childrens disabilities, in the 'wah wah i cant find a man" diatribe. Lord that makes me want to puke every time i see it.
Maybe the men you have dated think youre ugly, physically or personality-wise. Or ya just whine to much.
It is NOT your kids fault for your personal problems.
Please stop blaming them. | |
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| Any single parents of disabled children??
Posted: 11/6/2008 9:01:25 AM | I have a 21 year old son who has Fragile X disease. Basically he's Autistic with the rocking and such. You can only imagine the looks and comments he and I has gotten from people with "perfect children” I had an older man tell me what that boy needs is a good spanking one time. I reframed from beating the guy to a pulp right there at Long John Silver’s because I know how IGNORANT people can be. Ignorant means lack of knowledge about a subject. So when you run into ignorant people and they say something or look at you funny just smile and tell them to have a wonderful day. Don't lower yourself to their level. It's hard I know but you know how precious all life is.
God has a special place in heaven for the handicapped or intellectually challenged and those who care and love them.
God Bless,
Tom N Tyler | |
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