|
|
|
|
|
| | FibromyalgiaPage 3 of 8 (1, 2, 3, 4, 5, 6, 7, 8) | No one but yourselves truly knows what you are going through....(shaunamarie78)
==============================================================
Your wrong about 2 things Shauna,...
-the first is,...we are NOT the only ones who know what we are going through,...
our families know and suffer along with us,... no matter how stoic we would like to think we are,...
and thanks for reminding me of that,....
- all those "other things" you say your MOM suffered with as well,..were actually part of the same thing,...fibro,..in fact from all I have read,...The first symptom most doctors address is depression,...(me included)
IT IS THEE MOST COMMON SYMPTOM,..and the one that needs to be dealt with first because if you have been suffering for years (as many of us have,..prior to diagnosis)
You can't see the light at the end of the tunnel of hope,...if you are living in a fog of pain, doubt and hopelessness so thick, you can't even see the tunnel,...
I am just now coming out of the fog,....and I can truly tell you every single day had been a struggle just to get through,...and I did so only by saying well I made it today,..if it gets worse I can always take steps to do something tomorrow,....
I am so sad to hear that your MOM,..never had the chance to see that in retrospect,....
hindsight truly is 20/20,....and sadly so are diagnosis sometimes,....
but if you read my earlier post,...you would have read that my doctor didn't diagnose me either,..I did,...and I gave her all the informational web sites,..sites to help the patient and to help the doctors confirm the diagnosis,.....
Doctors are only humans too,....they can't know everything,...and in the usual 10 minutes alloted per visit,..they don't have time to deal with anything but the immediate complaint, that brought you in that day,....In a perfect world they would keep on top of all your complaints over the years,...but,...they have too many patients to make that reality,...each of us however,...is the only patient we have,...so for us it's more manageble,...
That's not to suggest or promote self diagnosis,...but when I tallied a list of complaints over the years and asked her,..is there a disorder that would encompass all of this list????
Then she saw the light too,...and we set out to elliminate all other possibilities,...we are almost at the end of that process too,...and with each ellimination comes something that I never knew I needed,.....VALIDATION,....because your right,..we aren't nuts,...and this is NOT in our collective heads,....and medicine may not be able to cure,...but it can make things easier to live with,....
It's only been since my diagnosis,..that I have learned of a surprising number of friends who have been dealing with this,...or have had someone with fibro,..in their life,...thank God for the easy access to thje sheer voluminous information available to us who have computer's at our disposal,....
so in conclusion,...
THANK YOU,...shaunamarie78,....AND TO MY SON,..AND ALL OF OUR FRIENDS AND FAMILY WHO ARE THERE FOR US,....   
ps,..I HOPE YOU DON'T LAY GUILT AT YOUR FEET FOR NOT HAVING "known" EARLIER,....
The loss of your father may have been hard on your MOM,...but you have now lost them both and my heart goes out to you
if you want to read more check this site out,...
http://www.arthritis.ca/types%20of%20arthritis/fibromyalgia/default.asp?s=1
http://www.sover.net/~devstar/ | |
|
| Fibromyalgia
Posted: 6/13/2006 4:39:32 AM | Well, as I stated, when I was replying, I was replying only from what I seen my mom suffer from. I know all of what you have written, believe me, I know. I was pretty much her main caretaker the last 20 months of her life.
My mom must have seen every freaking kind of doctor around. You name it, she seen it.
And we suspected fibro, believe me, there's not too much I don't know about the damned disease.
But that was never the kind of thing she wanted.
And I know I go over the symptoms. I guess there is just a certain amount of frustration with it all. I mean, how could not one professional say that's what she had? This was over a 10 year span. That included a psych, family doctor, and pain specialist. Plus, the kidney specialist, the bowel specialist, the dietician, the gynecologist, the physical therapist, and therapists.
I'm sorry for barging in on this thread. It obviously has not too much to do with the original topic. Just a lot of anger. I had to watch her die and there was no reason for it. I didn't understand. And that's why I said you're the only one who knows what you are going through. I got to the point where I didn't believe her.
I've just got a lot of hatred towards this disease. And anyone who suffers from it knows what it takes from them. | |
|
| Fibromyalgia
Posted: 6/13/2006 9:25:12 AM | | thank you for this post..its been hard to find anyone who can relate to fibro.,all the posts have been helpful,and a relief to know i'm not alone!'i've had fibro for many years,i too have severe allergies to certain meds..trial and error,..if u need a nap..take one!no more guilty feelings for bein tired/sore/frustrated!thanks again to all who have posted..huge help! | |
|
| Fibromyalgia
Posted: 6/13/2006 9:29:32 AM | I was recently diagnosed with this. Most of my doctors didn't even believe that men can get this syndrome.
They think it was brought on by meningococcal meningitis that almost killed me when I was 9. Just before that were the last of the "bright" days of my life. Everything since then is a blur and trying to remember anything is impossible. I have been in the fibro fog since the age of 10 and it got progressively worse over the years. The depression was either caused by the brain damage suffered at 9 or by the reaction to losing a little more of myself everyday over the last 32 years.
Lately I've found that by cutting MSG out of my diet I no longer get very angry at all, even lass so than most people. I am no longer being treated for bipolar because I had never even missed a night’s sleep due to mania. MSG was my biggest problem and can be found in almost anything bought at the grocery store and restaurants. Since they changed the way ingredients are listed a few years back, they can list MSG as a natural ingredient since it is not pure MSG.
My muscle and joint pain and my fog were reduced by cutting out MSG and all phosphates. The phosphates build-up in my cells and also attract calcium which it loves to bond with. This causes MY pains and the unintentional popping of my joints. I can reach up to shampoo my hair and my shoulders and elbows all go pop.
I am sorry to burden this thread with so much of my self. I have plenty to say but most of you know most of these symptoms already.
Chuck | |
|
| Fibromyalgia
Posted: 6/13/2006 11:40:03 PM | I'm very sorry if you got the impression that your comment was unwelcomed or pertinent,...shaunamarie78
especially since I believe the very opposite to be true,...
you have a right to be angry,..(we all are I think) and to voice it,...
especially in this thread,..
***( I got to the point where I didn't believe her)**
this comment especially hits home because I have felt this from others
some have just said it to me,..but even worse,...
there have been times when I believed this must be true,...
I wonder but doubt that I am alone,..
Do you feel guilty for thinking this???? because if you do,..don't
( tough call,.I know ) but honestly give yourself a break because the reaction is normal,...
I feel your pain,...and wish I could help,...my thoughts are with you
======================================================================
My muscle and joint pain and my fog were reduced by cutting out MSG and all phosphates. The phosphates build-up in my cells and also attract calcium which it loves to bond with. This causes MY pains and the unintentional popping of my joints. I can reach up to shampoo my hair and my shoulders and elbows all go pop.
I am sorry to burden this thread with so much of my self. I have plenty to say but most of you know most of these symptoms already.
Chuck
Boy oh boy can I relate to this too,....I am sorry to burden this thread with so much of my self. ,...Chuck
It seems to be a common personality trait that comes with this GD disorder,...
Our need to always appologize,...we seem to all do it,...comes from years of being tested and finding nothing,..( I think) and in the medical world,...
IF WE CAN'T FIND IT,..YOU DON'T HAVE IT,...well if we don't share,...here,..then where can we unburden all this emotional baggage that also comes with this disorder?
I sure hope I am not alone in saying this but isn't this the absolute right place to vent all of this,..in a place where other actuallDO know what we have endured for so very long?
| |
|
| Fibromyalgia
Posted: 6/14/2006 5:44:53 AM | again,thank you for this thread..all the posts show so much support and kindness to EVERYONE affected! i remember i had a root canal done,boy were my friends and family supportive then,but during a flare up!!..if you can't see it...hmmm!! i will continue to read all your posts..and if you could see me smile....from ear to ear!! thank you again!
p.s-any suggestions for when changin diet doesnt help one bit?! | |
|
| Fibromyalgia
Posted: 6/14/2006 7:23:34 AM | My diet might only work for me.
I had to change my diet because of known food problems. I just got lucky that it helped my fibro too. I also lost about 35 pounds from eating food that was safer for me. I had to cut down on the food suppliments because they all seem to have the stuff I can't tolerate.
Like Marita said that if the medical community doesn't know of it then it doesn't exist to them. There was a time very recently when PMS was all in the head according to doctors.
Chuck | |
|
| Fibromyalgia
Posted: 6/14/2006 7:24:31 AM | My diet might only work for me and a few of my friends that have tried it too.
I had to change my diet because of known food problems. I just got lucky that it helped my fibro too. I also lost about 35 pounds from eating food that was safer for me. I had to cut down on the food suppliments because they all seem to have the stuff I can't tolerate.
Like Marita said that if the medical community doesn't know of it then it doesn't exist to them. There was a time very recently when PMS was all in the head according to doctors.
Chuck | |
|
| Fibromyalgia
Posted: 6/15/2006 7:05:03 AM | marita,i checked out the site u've listed,i am now a ''member'',thank you for posting it.i recomend everyone take a peek!welcomed with open arms,and gentle hugs!!second home!!
the discussion boards r awsome!
*****huge hugs to ya marita**** | |
|
| Fibromyalgia
Posted: 6/17/2006 8:55:44 PM | I just wanted to tell you and others,...(and you all probably already know thing yourselves)
If you read these forums and agree, disagree or have knowledge of something peryaining to this thread,...please don't hesitate and share herein for all to read,...
I say this only because time and time again I get e-mails from people who tell me their story,...
or their experiences,...their symptons,...and what has been helpfull in dealing with same,..
I appreciate all those letters,..and am always glad to help,...and be helped in return,...
But,...you would be surprised just how many folks read what has been shared herein but never add a comment....
PS,...icequeen73,...thank you for that kind comment,... | |
|
| Fibromyalgia
Posted: 6/18/2006 2:27:43 PM | This was a great thread for me also.. as I hadn't run across this till today!! Marita your stuff is truly informative for all that is touched by FMS, either having it or having a friend or family member with...God bless you for helping all...
I only noticed one post with mention of it being passed along in the family lines. This is how I found out about my diagnosis in 96' after a sudden fall down the steps. The combination of, and that with a hit of trigger points, was a given for my Doctors, slowly I started having most all the complaints herein, osteo, hypothyroid syndrone, there were a few more mentioned migrains, etc.
In our small community, there is a monthly suport group, we lean on each other and give each ideas. I lost over 100 lbs. tried many diets. both good and bad. Used topomax for antidepressants. Got rid of an tirrant husband and other stressors in my life. hah. Started, Meditation, and yoga. Pilates was to tramatic on my joints.
The pain was truly enough to make me insane...the Doc's thought I was narc. shopping. I chose the injections at first in my back & neck in a pain clinic. just long enough to make me realize for me it was mind over matter and alot of strecthing exercises.
Three weeks ago I had a setback, with heart attack, came out smelling like a rose. Again, the heart being a muscle has made it so I had to give up my only vice, smoking, oh well. I am here for the duration. As I am the only one here for my 13 yr old Daughter..
But wanted to thank you Marita, you have truly run the gamat with FMS, and hope you don't have to go the distance with MI, as I did...I will stay hooked-up with this thread, It is a truly good read... I have learned a great deal...hopefully I will learn more...
Stay well everyone, and just find out what works for you and use it.
Hello icequeen,,, I am glad you are doing well.. and that I got to run into you again, stay healthy babe... hugs...optim | |
|
| Fibromyalgia
Posted: 6/19/2006 7:11:49 AM | Marita..i'd love to add info..but i'm only just learning about fm..i know all my symptoms,etc,.meds,pain,coping..all difficult things!i have had fm for many years,symtoms began way back when i was a teen,ibs,tmj were the 2 that effected me the most back then.i had a tramatic,unexpected death in my family when i was 19,and a bad fall down some stairs at 21..after both of those.. fm started and got severely worse.anti-depressants seem to be handed to me like candy..but i wasnt depressed.i faught with my doctors even back then to not have to take anything unless i felt i needed it.finaly,after many years of negotiating,i was givin meds to take only ''as needed''.i speant many years feeling guilty,embarrased etc., for the fatigue..i mean,who can help it when they're tired?someone can be in bed for 8-12 hours,but if you're waking up every hour..wouldnt you be tired the next day!my mom is my biggest support,understanding,helpful,and supportive.even when neither one of us knew what fm was!now,if i feel the need to lay down,sit around,i do!i dont get stressed about everyday chores...although..it does bother me to see my home untidy!*sighs*
until i found this thread,and the link you(marita)posted,i had no clue where to look!my computer is new,so,searching the web wasn't possible till recently.i was so excited when i saw this thread,to actually find others like me..that truely understand the everyday struggles,and concerns.
i will continue to add as i learn,complain when i flare,support all,and remain excited at finding all of you out here!
trust me,i'll thank you all at least a million times...and then say it again!!
*optim-thank you suagar...tryin to stay healthy...hugs right back at ya!!
ice | |
|
| Fibromyalgia
Posted: 6/19/2006 5:24:12 PM | Thanks IceQ..you need all the support you can get with this FMS syndrome, this was something I left out. I went to my local Doc, and Rhuematiodologist, and local hospital that's where I found my support group. But you could also find it in your local papers or advertised, or by friends. I feel it's important to talk about your pain and how you deal with it. I actually gave some pointers on yoga to those in my group, I am no master at it by no means, I just do my own little version of it, my designed for me... as much as possible and it does this girl good...I showed them how the could vary their own little verison to suit their needs...it was more fun then anything else... lol.
You know you do whatever works for you, and if you have a "FLARE-UP", don't wait till it gets too far out of hand to deal with, I did that and I ended up in bed for a couple of weeks.
Some just don't understand your pain, Some will never understand your pain, Some have no way or concept of understanding the chronic pain we sometimes have to deal with.
God bless you all, **Marita**,^^^bangin in on this thread...I saw that not anywhere darlin... you were helping in allways !! God bless you the most, as you have given so much of yourself in here...you truly need to start a column in a paper or something. You qualify most definately...take care of yourself... Optim, I hope you never have to deal with a MI, or anything as such it truly scared the hell out of me, I only have my daughter to think of here in Pa, and she is just 13 yrs old...God is good, and he proved it again to me.smile...... | |
|
| Fibromyalgia
Posted: 6/19/2006 9:08:15 PM | As it turns out there is no support group specific to fibro in my comunity,....
kind of sad when you consider that this is the capital city of the province,....
but I did find a web page as a support web site specific amd exclusive to fibro,...
a forum type,..but one that has information as well as a place to share
http://www.efibro.com/forums/?utm_source=adwords&utm_medium=ppc&utm_sponsored=fibromyalgia_group_support&utm_campaign=fibromyalgia_support
Fibromyalgia Forums,.....these are some of the topics discussed
Fibromyalgia Symptoms
Discussion regarding the waxing and waning symptoms of Fibromyalgia
Fibromyalgia Treatments
Discussion revolving around different treatment and outcomes for Fibromyalgia
Fibromyalgia Doctors
Experiences and outcomes with MDs/DOs treating Fibromyalgia
Others who help people with Fibromyalgia
Experiences and outcomes with other alternative health care professionals treating Fibromyalgia
Non Fibromyalgia-related
Please use this message board for all personal matters not related to Fibromyalgia discussion
Products and Services
General Discussion
Discussion regarding products and services used in the care of Fibromyalgia
Archives
Archived eFibro.com Forums
Archived forums from the old efibro.com site
There is also a resource page that can link you to just about anything you would ever want to know,....sometimes being cooped up at home gives you (and by you I mean me) plenty of time to surf the net,....
I just love living in the computer age because everything is right there at the tip of your fingers,...and doing research makes me feel I am not passively letting this happen to me,....
Something I haven't felt in very many years,....and to my surprise,...when I bring in informations or suggestions to my doctor,..she doesn't treat me as if I were a hypocondriac out of my element,..instead she treats me as a partner in this journey for relief,....not all doctors react like that,....
Thank you all for your kind words,....and appreciation,....but who better to help us than those of us walking down the same path,....and it is easier than walking it alone
I hope this forum doesn't get lost in obscurety,.....it is up to all of us to keep it alive,....for those that need it tomorrow 
there is another good site,...
The Fibromyalgia & Fatigue Centers, Inc. (FFC)
http://www.fibroandfatigue.com/ | |
|
| Fibromyalgia
Posted: 6/20/2006 8:15:16 AM | There you go again Marita, you are such a sweetie...helping out others..Classic lady you are!! How truly it's a shame that there isn't more reconized groups on this though, for any of the above, they confused mine with MS, & Osteo early on!...FMS, we have been sharing about,and the group that is locally here, except during winter months, lets the family of those with also. This helps in many ways too. As the family members meet people to dump woes on.
It only takes 2 people to start a group as I see it, Marita, or for of any of the rest of you that feel the need here. But you have to have the courage, faith in yourself and someone else to organize it. As there will be times for back up when people are not up to it... Really not as hard as it sounds. And then possibly the co-opperation of a Church or a room at a Hospital or even someone's house. And you can go from one house to another...
Sorry to be so bullish about it...just know how much venting to other's can do for for you, well me anyway... You know, make their light's go on, above the type of thingie above the head..lol Even restores your faith. Exchanging phone numbers within the group, so when you do start to run down, you have someone to call..have those crazy pains that make no sense accept to us that have this assinine syndrome until they come up more info on this...
Speaking of fibro and fatique babe, what a great link!! I thought right before my heart attack I was having either a flare up or my thyroid meds needed to be adjusted...lol...WOW. See you just never know what life has in store for you... Yes my synthroid meds did need to be up'd, and who knows if it was a flare up, could have been, as I still feel kinda out of it...Hah...I only thank God, he just block the one aorta, and they did fixed that with the 3 stents..Yes. Some are not so lucky or blessed I won't preach about it, I am not one who does this... I just feel very, very happy to be typing in here...
Marita, you ARE God sent, seriously you should, if you have the time & energy, and an extra friend, even a family member, those beautiful kids of yours even!!!... Could start up a local group. None of my business, but could keep somebody out the psych ward, or better yet..save a life.!!! You probably already have on here sugar...LD, alias Optim I will try to stop running my keys now. and guys if you feel outnumbered I think it's because you are, lol. This happens way more (daughter's slang) to Woman more than Men... but still feel the pain...you aren't forgotten.
That is how I found out I had this dreaded thing in the first place(brother)...make everything a positive if you can. | |
|
| Fibromyalgia
Posted: 6/20/2006 4:43:26 PM | its too bad we dont all live closer..sounds like we'd all have some good talks in person!Marita has become our mother-hen..and i truely am greatful for all your advice girl..i am doing my best online to find as much info for all of us..its always nice to vent,but i'm a nuturer(spell check)!! as well! always seems to be someone else i want to take care of other than myself..and for me,it brings me happiness to take care of others.
i never mentioned my children b4,my son is 12..my lil man,and my daughter is 9..mini me!! both are fantastic kids,well behaved,honor students..and not to mention how cute!!hehe mama's pride!,the death i experienced at 19 is something i rarely share with others,yet i feel so comfortable with all of you..at 19 i gave birth to a beautiful son,jordan,he started having difficulty breathing,no biggy the nurse assured me,well,an hour later,specialist from sick kids was at his side,trying their best,sadly,5 hours later jordan passed.a sad time for me,took a long time to heal and move on.but through all that pain i had my other two..i have 3 kids,ones in heaven..the other two r my angels.
my doc's seem to think that since most of my symptoms started to worsen around then,that the trauma of his death triggered the fms...encouraged to drown my sorrow with anti-depressants rather than grieve was a huge mistake..once i was off those meds,i recovered emotionally,as best as i could.i dont want any of you to feel bad at my loss..he is and always be a wonderful part of my life,as brief as our time was it will always be!
thats my lil story..how true do any of u feel that any kind of trauma could start such a terrible illness?
hugs all around to you all...
ice | |
|
| Fibromyalgia
Posted: 6/20/2006 5:57:34 PM | | Finally, I have met all of you that know how this horrible thing can be. I would not wish this on anyone. Fibromyalgia changed my life. I divorced my husband of 25 yrs, because I didn't think it was fair to him to live with me the way I am. I can't do the things that I want to do. It seems that no matter what I try or what I do, nothing seems to help. I have not been pain free in eleven years. I can't walk because of the pain. People that don't have this or know about it think you are crazy. It is not in my head. I could handle the pain but it is the fatigue that has gotten me down the most. Each morning when I wake up, I just hope and pray that I can get out of bed and when I do, I pray that I won't fall asleep later on which I have done many times. I am afraid to keep my grandchildren. But, I will go on and make it one way or another. I don't like the pain medicines, but sometimes it is the only way. I laugh, because these doctors don't know what they are doing when they give us all these pain medicines. Don't they know that sometimes the pain is so bad and the hurt of not living a normal life can make you just want to take as many of those tablets as you can. Not today, but who knows. Thank you all of you for listening to me. No one else can really understand and it is so good to have others that know what I am feeling. Thank you. | |
|
| Fibromyalgia
Posted: 6/20/2006 6:34:40 PM | welcome bamafan!!thanks for sharing your story with us!i hope u continue to post,and please check out the sites provided by marita..they r so great!
hugs to you darlin!
ice | |
|
| Fibromyalgia
Posted: 6/20/2006 8:50:40 PM | | Dear Icequeen you mentioned trauma and if it's causes FMS....didn't any of your Doc's ask if you had any thing happen to you even emotionally to you..trauma wise. That was one of the first questions out of my rhuematiod docs mouth's...It is thought to be brought on by this sweetie. Whether you have fallen down the steps as in my case, or something traumatic has happened to you. That sounds like it has in your case, Sugar...hope this all works out for you soon. My prayers go out to you and our newcomer... | |
|
| Fibromyalgia
Posted: 6/20/2006 8:53:59 PM | Dear Icequeen you mentioned trauma and if it's causes FMS....didn't any of your Doc's ask if you had any thing happen to you even emotionally to you..trauma wise. That was one of the first questions out of my rhuematiod docs mouth's...It is thought to be brought on by this sweetie. Whether you have fallen down the steps as in my case, or something traumatic has happened to you. That sounds like it has in your case, Sugar...hope this all works out for you soon. My prayers go out to you and our newcomer...
I had 7 different diagnosis before It finally came to FMS...at least it's not as bad as I lupus, IBS, MS, .. or some of the original ones that they had tagged on me...and obviosly trigger finger too... so sorry... didn't mean to make a mess of things.. lol
| |
|
| Fibromyalgia
Posted: 6/20/2006 9:15:10 PM | ya,my rhumi asked...i had that at 19 and a bad fall down stairs at 21..she figured that may have triggered it..but i had symptoms when i was like 15..and nothin tramatic happened back then.it just seems wierd that all the pain increases as i get older!thanks for your thoughts..check back soon..have a pain free nite all
ice | |
|
| Fibromyalgia
Posted: 6/27/2006 6:32:36 AM | It seems that they always manage to trace it back to a trauma. Who hasn't had a trauma in their lives?
I don't think it is at all trauma related. Whatever gets the ball rolling though.
I have to fight it in my own little way. It seems that quite a few people have said this. I have seen websites that relate the pain to build-ups of calcium caused by built-up phosphates in the cells. So I cut down out all phosphates, it made a big difference.
They also prescribed anti-depressants, not for depression though. They are actually helping with the remaining pains. I don not recomend any of this to anyone. This is just what works for me.
Chuck | |
|
| Fibromyalgia
Posted: 6/27/2006 3:03:40 PM | Hey Chuck,..it's been a while,..how are you keeping,....
The problem with this disorder is the very nature of it affecting virtually any and all parts of the body to varrying degrees,...
I too have been told that perhaps my problem is MS,...
The only thing all the proffesionals seem to agree on is that first you need to go on anti-depressants,...from there,...it's all hit and miss,... | |
|
| Fibromyalgia
Posted: 10/18/2006 6:25:13 PM | I was told a little over 2 yrs. ago I have fibro. after having been in a car accident 2 yrs. previous to this.It's funny how all the doctors the insurance company sent me to were let's just say, less than helpful.Having worked in a hospital,I am all to familiar with the God complex alot of doctors have and I don't tolerate it.Their answers to why is this happening or why do I feel pain here or why do the muscles seize where responded to by I don't know.Finally,I found out some answers from Doctors my lawyer sent me to.It makes such a difference to see a good doctor who is well educated in this area.All my questions were answered.Fibro can be brought on by physical or emotional trauma.I have other injuries from the accident as well,which complicate the treatment further.As a former pharmacy tech,I know all to well the side effects of the medications and never really took much meds before the accident.My life has been reduced to taking pills on a daily basis,not being able to plan ahead anymore and needing help from family and friends to go shopping etc. on certain days.I am no longer capable of working (former workaholic) which is very frustrating.Frustration aggravates the fibro.Viscous circle.A doctor in London prescribed Rivotril(clonazepam) an anti-seizure med with nerve pain management properties.It's very sedating and find I can't think straight but I don't fell the pain.Without my friends and family,I'd be trapped in my house alot due to being impaired.Some people have no clue when you can look normal and yet be filled with pain.My one sister said I know what you're going through.I had tendonitis.LOL.Yeh,like that's even close.I've always felt invincible but now I have been knocked on my butt and I can't get up People don't understand unless they've been through it.Depression,loss of identity ,always feeling sore or in great pain ,other people not understanding takes a major towle on you.Not being able to do the things you previously enjoyed.And most GP's have no idea what to do for you except give you more pills.I've been able to stay positive for almost 4 years but am not able to keep it up anymore.I am going to pain management sessions soon to hopefully lear how to cope better.To all those suffering from this or who have someone in their life suffering from this
Thanks for listening to my rant.Sorry ,just having a bad day. | |
|
| |
|
|
|
Page
3
of
8 (1, 2, 3, 4, 5, 6, 7, 8)
|
|
Home
login 