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| | FibromyalgiaPage 5 of 8 (1, 2, 3, 4, 5, 6, 7, 8) | | If you're over weight, weight loss will help for sure. I myself find meditation helps the most since I usually react badly to herbs. Flax oil and coconut oil can help but in small amounts and gradually increase. For immediate relief for pain take a very cold shower for at least 5 minutes. It won't cure but it works better than any herbs or anything I have tried. Sitting in the lotus position and meditating gives me the greatest relief. It is not easy to do but it's well worth it. I have decreased pain at least 80% alone with meditation and diet, eventually I am sure able to cure it completely. | |
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| Fibromyalgia
Posted: 6/3/2008 2:43:20 PM | I categorize fibromyalgia in the same category as SIDS (Sudden Infant Death Syndrome). It is a diagnosis of, "I have absolutely no idea what is wrong with you so I will call it fibromyalgia and the drug companies that subsidize my practice will be overjoyed at all the new drugs I will prescribe for you."
SIDS will never be cured and neither will fibromyalgia. The reason is that if they know why the infant or toddler died it is no longer SIDS. Fibromyalgia works the same way, if they know what is causing the pain it is no longer fibromyalgia. To me it's an incompetent diagnosis from "doctors" who are too lazy to find out the underlying cause of the patients particular problem. It is far easier and much more lucritive for the doctor to call it fibromyalgia. After all, dicovering the real reason for your ailment costs time and money, both of which most the doctors of our era are too eager to hold on to rather than determine the cause of your illness. | |
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| Fibromyalgia
Posted: 6/3/2008 4:47:24 PM | My sister has it and she has become vegan, joined a gym, sees a naturopathic doctor, and goes for acupuncture and now has her condition under control. She's dropped some weight and looks and feels fantastic!  | |
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| Fibromyalgia
Posted: 6/29/2008 11:01:36 AM | i cant beleive i read this .i have fibro for the last 10 years,live in uk where most doctors think that is just 'atention seeking'.i worked full time until june last year when a bus hit my car wich was write off.just before the accident my daughter (10) was diagn. with diabetes tipe 1.i am a single parent with no other family.PLEASE any advice to be more mobile(i am used to the pain)will be very much appreciated .
thank u all who shared your knoledge.
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| Fibromyalgia
Posted: 12/11/2008 5:54:52 AM | Fibromyalgia/ME, here's something for those who are familar with this to read, quite interesting actually !!
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The national patient organisation, the 25% ME Group, has a letter published in this morning’s print edition of the Times - well done, Hayley!
http://www.timesonline.co.uk/tol/comment/letters/article5320756.ece
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The Times Letters page print edition and online
11 December 2008
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ME patient mourned
More needs to be understood about the sufferings of patients with ME (Fibro/chronic fatigue syndrome) as Sir, Lynn Gilderdale was a valued member of the 25% ME Group and we are all heartbroken by her death (report, Dec 9), especially as we are fully aware of her mother’s total devotion to her.
We represent ME sufferers who are totally bedridden, some of whom are tube fed and dependent on caregivers, and others who are lucky enough to be able to leave home in a wheelchair occasionally, two other members of our group have recently died with ME, (fibromylagia, chronic fatigue related illnesses) on their death certificates.
Despite thousands of medical research papers showing immunological, neurological, endocrine, cardiac and gene expression involvement in ME, it is thought of as an illness of fatigue and even called chronic fatigue syndrome by the media and some doctors.
Our members in reality have to deal every day with truly debilitating, frightening and overwhelming symptoms, and they also have to cope with the loss of anything resembling normal life.
Lack of knowledge from the medical profession, and lack of understanding from a society which has been told for years that ME is merely fatigue, can make this awful situation truly intolerable. Lynn’s mother made the point that ME is greatly misunderstood and that Lynn suffered from the stigma as well as bravely fighting such severe illness.
ME sufferers need to have their suffering recognised, and biomedical research funded, if more deaths are to be avoided.
Hayley Klinger
25% ME Group
Hummmmmmmmmmmmmmmm
let her now rest in peace  | |
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| Fibromyalgia
Posted: 12/14/2008 5:25:13 AM | I categorize fibromyalgia in the same category as SIDS (Sudden Infant Death Syndrome). It is a diagnosis of, "I have absolutely no idea what is wrong with you so I will call it fibromyalgia and the drug companies that subsidize my practice will be overjoyed at all the new drugs I will prescribe for you."
SIDS will never be cured and neither will fibromyalgia. The reason is that if they know why the infant or toddler died it is no longer SIDS. Fibromyalgia works the same way, if they know what is causing the pain it is no longer fibromyalgia. To me it's an incompetent diagnosis from "doctors" who are too lazy to find out the underlying cause of the patients particular problem. It is far easier and much more lucritive for the doctor to call it fibromyalgia. After all, dicovering the real reason for your ailment costs time and money, both of which most the doctors of our era are too eager to hold on to rather than determine the cause of your illness.
I made a mess pasting this, but I am quoting & replying to message 102.
I completely disagree with this.
I have been having mobility problems & excruciating pain for over 10 years, was passed from pillar to posts by many doctors, sent for more bood tests, xrays & examinations than you can imagine, no-one understood it but everyone tried to help. Their diagnosis's just happened to be wrong. I finally saw a rheumatologist earlier this year, which was when I was diagnosed correctly. I am as text book a case as you could find, yet it took years for this diagnosis. I don't think any avenue hadn't been explored previously, including unneccesary operations!
Ok, it may not be good for me, but I cannot complain at the level of investigation.
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| Fibromyalgia/ME/Chronic Fatigue
Posted: 12/15/2008 7:15:39 AM | I totally disagree with the term SIDS as a way to *sorta* explain this, after all
research has indicated of the years of research that some people have a genetic predisposition to fibromyalgia, although the symptoms usually do not show up until triggered by traumas.. ex: car accidents, fires, etc, as for ME, one example is a virus that has not been fully treated.
One popular theory as to the cause of fibromyalgia is that a trauma or significant stressor turns on an individual’s “fight-or-flight” response. This response, designed to help us function in an emergency situation, usually only lasts a short time, then turns itself off. But when the stress becomes prolonged, the fight-or-flight response gets stuck in the “on” position and the person’s body remains in a state of high alert. Being in a constant state of high alert puts even more stress on the body. This results in, among other things, a loss of deep, restorative sleep, which in turn causes pain amplification throughout the body. Thank-fully for some there are remisssions and relapses, all depending on lifestlyes.. (Stress/diet/and weather is to be a concern) in other words TRIGGERS/therefore life becomes all about ** balance** a new way of living/and more so than the average person....Anyway regardless of what initially triggers the illness, research has shown that fibromyalgia patients have VERY REAL physical abnormalities, including, such as decreased blood flow to specific areas of the brain, particularly the thalamus region, which may help explain the pain sensitivity and cognitive functioning problems fibromyalgia patients experience, high levels of “substance P,” a central nervous system neurotransmitter involved in pain processing, as well as low levels of nerve growth factor. Low levels of somatomedin C, a hormone that promotes bone and muscle growth.
Low levels of several neurochemicals: serotonin, norepinephrine, dopamine and cortisol. Low levels of phosphocreatine and adenosine, muscle-cell chemicals.
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| Fibromyalgia/ME/Chronic Fatigue
Posted: 12/15/2008 7:18:59 AM | ME..................standing for... *Myalgic Encephalitis* which was called Chronic Fatigue at one time...
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bw1984
| | Joined: 12/13/2008
Msg: 109 | |
| Fibromyalgia
Posted: 12/17/2008 12:14:06 PM | | You can't get rid of it completely. It is a chronic syndrom. You can TREAT it with Acupuncture and diet makes a huge difference. Go Vegetarian.... it will make a gigantic difference. Get lots of water and lose processed foods. | |
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| Fibromyalgia
Posted: 12/18/2008 11:59:10 AM | | I've eaten little meat and little processed foods and drink water all the friggin' day and I still hurt like hell, especially with the colder weather being here. Fibro can effect people in different ways and on different levels. Some people have few symptoms while others are practically an invalid from it. They say to try stretching exercises and then I hurt from them, even if I do it every day. Just going to the store and walking around and then carrying the bags tires me out and makes me hurt for a couple of days. I do take Lyrica now and it helps some, but I would love to try acupuncture. It sucks that I feel the way I do now, as I used to hike in the woods for several miles and do yoga and felt fine afterwards. | |
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| Fibromyalgia
Posted: 12/25/2008 12:26:32 PM | | I used a wonder essential oil blend call Valor from Young Living oils... and myiofascail release (light massage) ...yoga and cutting carbs helps... | |
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| Fibromyalgia
Posted: 1/7/2009 6:49:04 PM | You pretty much covered it. I also have had this "condition" for several years. I find reducing or eliminating caffine from your diet helps greatly. A stress free enviroment and knowing your limits are also good things to know. There is a publication that I found to be quite helpful. It is the fibromyalgia network. It can be found on the internet. It has some very helpful views from patients as well as physicians.
Best of Luck,
Northern^Lady | |
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| Fibromyalgia
Posted: 1/10/2009 2:00:17 PM | | My ex has had it for the last 10 years. Try a magnetic bead bracelet for the pain, not those copper ones. And check to see if you have sleep apnea. Which he did, which only compounded his condition. And made him more tired. | |
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| Fibromyalgia
Posted: 1/11/2009 8:42:00 PM |
PLEASE any advice to be more mobile(i am used to the pain)will be very much appreciated I have not read through entire thread but Magnesium Malate has been very helpful. Also have been advised about massage therapy. I need to find someone that knows about Fibro...basic physical therapy massages can cause a flare or make one worse if the therapist is just not aware. I'm going to do some more research on that. Someone in another thread suggested checking out massage therapy schools for a cost effective choice. Just need to make sure they know your condition and are training with the right mind set.
I tend to want to sit on the "pity pot" during a flare, when the pain ratchets up a few notches. But I was watching a show tonight about a child who is only 8 years old and never has gone a day in his life without pain due to brittle bone disease. Most of us will most likely outlive him...has put my thoughts about the pain factor into a completely different perspective...our time on earth is precious, no matter what obstacles in our path. | |
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| Fibromyalgia
Posted: 1/13/2009 8:23:57 PM | | My mother, and she had an orthobionomic massage therapist work on her. She was pain-free after a few treatments. | |
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| Fibromyalgia
Posted: 1/14/2009 7:38:52 AM | | Jacel- you should start a thread on Aspertame here in the medical section. | |
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| Fibromyalgia
Posted: 1/14/2009 1:16:48 PM | the one thing to remember is that this disease or disorder is different in every person, both in degrees and in location of the suffering,...and although trying everything possible is a good thing, but remembering that what might be the answer for one person may not be the panacea for another,....
its the people who tell you all that you have to do is x,.... y,.... or z,... and you will be cured, that add to the frustration when this does not come to pass,.....
and I think the thing that brings many of us down is that so many people telling us that we are the cause of our own disease,.....and that if we were better people we wouldn't have so many aches and pains,....because clearly it's something we are doing wrong,....
well that's not the case,....and the one thing that we (or at least I )try very hard to work on, is the guilt,.....and the many doctors that still believe if they can't find it ,...you don't have it,.... | |
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| Fibromyalgia
Posted: 1/18/2009 11:06:31 AM |
well that's not the case,....and the one thing that we (or at least I )try very hard to work on, is the guilt,.....and the many doctors that still believe if they can't find it ,...you don't have it,.... So very true. I have been very fortunate to have been diagnosed by two understanding Rheumatologists that that go a step beyond a GP in diagnosis. Now it's a matter of controlling symptoms...and that has been a journey of my own trial and errors. Those errors perhaps contribute to the guilt. Each day is different and even how I handle the pain each day can vary; depending on the level, I'm more angry than angelic. It's not like I can point to something visible, and say "look, see, THIS hurts" If Fibro had a bruise when it flared...we'd be purple people | |
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| Fibromyalgia
Posted: 1/20/2009 7:26:43 PM | Hello all, I was diagnose with Fibromyalgy, and arthritis after my kimo treatements for my cancer, never had problemes with bones or other symptoms of fibro before that. I was prescribed Lyrica within the first month i found was a miracle , wow could sleep, pain was controlled . Then was put on higher dosage, helped but found myself confused and disoriented, memory sucked . I stopped taking for those reasons. Popping the tylenols now. Found great tips tonight i will try , like cutting on sugar and carbs omg my 2 favorite things lol pastry and spagetti, But do we ever get our energy , muscle and strength back, so wipped out all the time and talk bout insomnia.  . Any how ty for the great advice .
 puma. | |
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| Fibromyalgia
Posted: 1/20/2009 8:37:47 PM | Check out this other thread on Fibromyalgia:
http://forums.plentyoffish.com/datingPosts7467114.aspx
I don't want to re-post here, but you can read my story on post number 72.
Here are some others to look through:
http://forums.plentyoffish.com/datingPosts3815329.aspx
http://forums.plentyoffish.com/datingPosts2994860.aspx
http://forums.plentyoffish.com/datingPosts5016125.aspx
http://forums.plentyoffish.com/datingPosts2147319.aspx
For pain:
Try homeopathic Rhus tox 6C
Take 3x per day 1300 mg Glucosimine, Chondroitin, with MSM
L glutamine
Acupuncture & Chinese medicine
Arnica gel on painful areas, or tablets.
Magnets (bracelets, pads, shoe inserts, etc.)
For better sleep:
Take a bath with Epsom Salts in it before bed. 2-3 cups per bath.
Take a Melatonin.
If you have restless leg problems have your iron blood levels checked. Low iron can cause sleep problems.
For general better health:
Evening Primrose Oil
Omega 3 fatty acids (flax oil has this)
Vitamin B6 (helps with the brain fog)
Magnesium (helps prevent muscle cramping, helps with sleeping)
Vitamin B12 (helps with symptoms similar to anemia, and with brain fog)
The spices found in curry help, like Turmeric.
Yeast infections or candidia can be a symptons of a Hidden auto-immune desease.
Avoid products made with yeast, including Brewer's yeast.
Get your Doctor to give you a round of Difulcan and then Nystatin for a longer time.
Avoiding these things is mentioned in many places on these threads:
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Aspartame (artificial sweeteners) can cause migranes
Sugar causes lethargy and brain fog
Caffeen
Gluten (in all wheat products)
Casein (in all dairy products except eggs)
Nitrites (in processed meats. You can find nitrate-free meats in groceries now.)
MSG (Monosodium Glutamate) can cause migranes
Artificial preservatives (salt, vitamin E, and citric acid are ok)
Artificial colorings cause muscle spasms and headaches | |
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| Fibromyalgia
Posted: 1/20/2009 8:40:09 PM | I will sing the praises of Magnesium Malate one more time...truly helps with muscles pain and strength. Take it at bed time, helps relax...I also break a 25mg minitab of Benadryl in half (12 1/2 mg?) (generic is cheaper) and that in combination with MM and something warm to drink may help with sleeping. Still have times of insomnia but usually because of other reasons. Most of time, sleeping all right!:zzzz
Hope you find some relief puma! | |
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| Fibromyalgia
Posted: 1/20/2009 8:40:42 PM | Oh, and take some vitamin D and/or go out in the sun about 15 minutes per day. This helps produce hormones that help you to sleep better.
For exercise, swimming is a good choice since it might not trigger the Fibro as much because it is low-impact. Then find a sauna or whirlpool to soak in. The heat might kill any lingering illnesses that your immune system can't fight off well enough--just like a high fever does. | |
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| Fibromyalgia
Posted: 1/20/2009 8:44:58 PM |
swimming is a good choice agree! There will be some places that keep their pool at a higher temp just for people with various forms of arthritis... | |
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| Fibromyalgia
Posted: 1/22/2009 9:39:54 AM |
Each day is different and even how I handle the pain each day can vary; depending on the level, I'm more angry than angelic. It's not like I can point to something visible, and say "look, see, THIS hurts" If Fibro had a bruise when it flared...we'd be purple people,...
HEAR >>HEAR !!!!!!
I dare say this is the one single thing we ALL have in common,....
Personally I can't remember a day absolutely pain free,...
I have no idea what that is like but talking about it all the time bores even me,.....
but isn't it amazing just how much we can endure,....I think personally,...I'd do well under torture,....
so when someone asks me in passing "how are you" and I answer "moderately average"
They usually pause and smile at such a creative answer,...and I'm probably telling the truth.
occasionally I pull out the "shitty but thank you for asking"
it usually elicits the same response,.....and I'm probably, still,....telling the truth. | |
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| Fibromyalgia
Posted: 1/22/2009 11:07:36 PM | Personally I can't remember a day absolutely pain free,... I mentioned in another thread; there is that brief moment when I am no longer asleep but not quite awake for pain to register yet...love those few seconds! And life goes on...beats the alternative
.I'd do well under torture,.... Completely agree! | |
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