| | FibromyalgiaPage 6 of 8 (1, 2, 3, 4, 5, 6, 7, 8) | Take a broad spectrum probiotic for months. NOT just with a couple of strains of bacteria. Not just acidophilus and bifidum cultures. It should have at least 10. Natural Factors and Udo's Choice make good ones. You'll find it in the fridge at the health food store. Don't by it off the shelf. It will deteriorate and be weak or dead. This is live bacteria we have a symbiotic relationship with that are essential to life. Eat LIVE yogurt and cheese if you can get it. Find a European deli that makes their own sauerkraut. It's fomented with probiotics naturally and is incredible for gut health. Don't eat the bottled garbage it's pasteurized and dead. It should be made with salt NOT vinegar. The IBS may get worse before it gets better but it will heal eventually when you have the right gut bacteria. Then all your energy will come back. It can take months but it works.
Antibiotics and pasteurized food have totally messed up our guts. That's the source of the problem. We need those bacteria to fight disease, to make vitamins from other vitamins (yes that happens in the gut),digest dairy, digest proteins and keep the gut lined with protective slime that acts as a nutrient carrier and lubricator. Without it you get constipated or irritable guts and you don't ingest nutrients properly.
Get your metal fillings replaced with porcelain if you can afford it.
Don't eat wheat or sugar. They are horrible for you. Ok, once in a while but you will see how it messes you up when you don't eat it for a week and then suddenly you go eat a big mac. Instant gut rot.
It took me years to figure this out but it cured me. They say there is no cure and that's just not true.
It's also a disgrace that doctors don't understand the basics of nutrition and gut health. They should be fired for incompetence.
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| Fibromyalgia
Posted: 1/24/2009 2:31:01 AM | Chronic Fatigue syndrome, Fibromyalgia and Repetitive Strain all share the same pathology pattern and often depends on what your MD knows as to what you will be diagnosed with.
I helped with a medical symposium based on these and their diffential diagnosis. The name of the symposium was: Which came 1st the Chicken or the Egg?
In general all pointed to elevated inflamation, primarly from some over taxing physical stress/strain.
These included Whiplash injuries, occupational biomechanic and ergonomics, over-training in athletics.
Each persons physiology and potential allergens would aggravate the underlying cause. And therefore, so many ways of treating. Diet, anti-inflamitory measure and decreased physical stress seem to be the best combination. | |
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| Fibromyalgia
Posted: 1/24/2009 10:08:25 AM | I have perused this forum, and did find some references to massage therapy. I'd like to add a caution on the type of therapy used as well as make an additional suggestion. Following, some experiences I've had treating FMS & CFS clients. I discovered I one of my cousins suffers with FMS & CFS as well as myoencephalitis. He'd had this for years by the time I was able to offer this advice and his wife indicated he was unfortunately not willing to try anything else.....he'd been through the mill so to speak and gave up.
I've been a massage therapist for 11 years now. early in my career I treated a friend's friend who suffered with FMS and CFS. At the time, and not knowing what I later learned at a seminar given my Dr Leon Chaitow on FMS & Muscle Pain (book by this title published 1995-I don't know if he's updated since then) other trainings throughout the years. I provided a "deep" massage at the woman's request - fortunately my deep work is done from the less is more philosophy. Despite attention to her responses as I worked she reported she was in more pain following her session.
Subsequently, I've worked on others with lighter pressure work successufully. And a short while later came across another client requesting deep work for her FMS - moderating her treatment fortunately it did not cause her pain.
I agree wholeheartedly with the statements made to the effect, that each of our bodies are different and the condition does not present exactly what someone elses does. There are the typical points which will indicate FMS
About a year later I began studying Cranio Sacral Therapy with the Upledger Insitute. I have since treated clients presenting FMS/CFS with Cranio Sacral Therapy. This is a very relaxing, balancing body work which releases tension/paind gently - there is no chance of a client experiencing pain during or following the therapy.
You can read more about CST at the Upledger site as well as find a trained therapist using the site or loging on directly to IAHP.com. Since the institute teaches many other classes, there is a key which indicates the classes that each practitioner listed has taken. Of course possibly the more the better, but I would suggest looking for Minimun CSI & CSII (after that SERI & SERII) - in referring clients to this site for friends etc...I suggest they interview the therapist starting by asking them what type of massage do they do or specialize in....if CST isn't one of the first two modalities - you may want to look further if you have a choice. This work is taught through out the US, in Canada and other countries. My friends mother received follow up treatments for other issues in Denmark.
Hope this helps those of you that have to deal with this disorder. | |
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| Fibromyalgia
Posted: 10/19/2009 8:24:37 PM | | if any of you have fibromyalgia and or CFS or CFS . and are single? Google in cfs and fibro singles for large group and chat | |
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| Fibromyalgia
Posted: 10/19/2009 8:38:45 PM | | DID you read about the new virus they found in CFS and maybe fibro too.its new and interesting.There seeing what may help it already.please have a nice day Fibro/CFS/Ed | |
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| Fibromyalgia
Posted: 10/22/2009 4:35:07 PM | | I have it and it sucks. Pain 27/7 that you just have to learn to live with. Will definitely have a major impact on any relationship I have. | |
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| Fibromyalgia
Posted: 10/24/2009 9:32:20 PM | I have had it for probably 30 yrs. Diagnosed about ten. I don't remember what a minute without pain is. I worked 2 or 3 jobs at all times until 2 yrs. ago. A yr. ago I stopped working all together. I take morphine and percs and gabapentine (not sure if that is correct spelling). I only sleep between 10-15 hours a week. It is so frustrating because I look okay so people think that there is nothing wrong with me.
I am not sure how the one man said it effected his relationships. I am frustrated because I would like to be playing volleyball and golfing daily but, I can only walk and swim.
Sex is great to relieve pain but, not in a relationship at this time.
I was really mad that I was dealt this type of life. Now I found out I might have cancer so I guess it can get worse. | |
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| Fibromyalgia
Posted: 1/6/2010 8:16:51 PM | | JUST WRITE ME IF YOU ARE INTERESTED I KNOW A LOT OF REMEDIES TOO MANY TO WRITE | |
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| Fibromyalgia
Posted: 1/7/2010 12:13:04 PM | The medical recommendations for Fibromyalgia, IBS, and Chron's disease have been updated to include getting tested for Celiac disease, since Celiac is underdiagnosed in this country, and Celiac can mimic the symptoms of these diseases. Many Celiac patients have been previously diagnosed with one of these diseases before getting the Celiac diagnosis confirmed. There is a genetic test, a blood test and a biopsy available for getting a diagnosis. Patients can also adopt a strict gluten-free protocol (casein-free is also recommended during the first year) with care that no cross-contamination occurs for a few months and see if their symptoms improve. However, the gluten-free diet is often not implemented correctly, so it is recommended that you go to a clinic, support group or website that helps Celiac patients follow this very strict protocol. (It is not a calorie-restricted diet, though.)
"Are You the One?"
http://celiac.org/downloads/FibroMag%20celiac%20story%20by%20EM%2007.pdf
http://www.thepatientconnections.com/blog.asp?uid=46 | |
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| Fibromyalgia
Posted: 6/17/2011 9:40:27 AM | Anyone want to share how they deal with Fibromyalgia each day?
For me I live one day at a time, try not to over do.
Having people in my life that understand Fibromyalgia has been a great help to me.
Have you ever had people say to you that you dont look sick?
Do you find it hard to say no?
Have you found it hard to find a Doctor that really listens to you?
What helps you deal with Fibromyalgia?
Have you ever had what I call fibro fog?
Do you sometimes feel like you are 104?
Do you find that certain foods can bring on a Fibromyalgia crash?
What kinds of medicines, or remedies have you found help you deal with Fibromyalgia?
Have you found it hard to keep moving? (yikes for me this is sometimes hard for me)
Here are some of the things I have found that helps me deal with living with Fibromyalgia .
Getting enough sleep.
Eating foods that are healthy, well trying to.
Some exercise helps me, if I dont over do. Swimming is my favorite.
Setting a goal for each day.
Wearing clothing that feels soft and warm, or that does not get to hot.
Hot baths, helps ease pain.
Saying no sometimes when it comes to others asking me for help.
Taking each day at a time, sometimes it is one hour at a time.
Trying to keep people in my life that understand that I have good days and bad days.
Do any of you have suggestions?
Or experiences to share? | |
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| Fibromyalgia
Posted: 6/26/2011 9:28:43 PM | | Yes I have been diagnosed with it. It feels like I'm filed full of cement most days. Lost my trade as a mason because of it and now starting over. Pain in the muscles most days, head aches, depression... the list goes on. I found walking helps me alot and some meds the Drs. give me. | |
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| Fibromyalgia
Posted: 6/26/2011 9:32:25 PM | | Yes I have been diagnosed with it. It feels like I'm filed full of cement most days. Lost my trade as a mason because of it and now starting over. Pain in the muscles most days, head aches, depression... the list goes on. I found walking helps me alot and some meds the Drs. give me. | |
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| Fibromyalgia
Posted: 6/28/2011 8:01:30 PM | | I would recommend looking into Candidiasis. Fibro can be one of the symptoms along with a whole host of other things. | |
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| Fibromyalgia
Posted: 7/24/2011 7:11:56 AM | I just joined plentyoffish and I already have another web forum for Fibromyalgia support... What I'm wondering is, how/when do you drop the FM/CFS bomb on someone you interested in? Do you wait until you meet? Have been on 1, 2, 3 dates? Tell them before? Should I post it on my profile?
I'm not employed right now, partly because the Fibro is so disabling and I'm in the middle of an SSDI case, and partly because I'm back in school full time to finish my teaching degree. (Gotta do something post-divorce to support the little squirt, right)?
I just have no idea how to enter the dating pool again with or without Fibro... especially with it, and I don't know how many of these guys that talk about hunting and fishing and tubing in the great out doors would be at all interested in someone with FM/CFS.
 Help please? | |
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| Fibromyalgia
Posted: 8/11/2011 12:00:11 AM | | I have had fibro for 15 years. I was a nurse for 25 years but had to give up my career because of the 24/7 pain. My marriage ended because he couldn't handle me always being in pain and not being able to do what I used to do. I am wondering if it is futile to even think that I will find anyone on here or anywhere that will want me ever again. Am I destined to be an old maid now? I am so lonely and have so much love to give. I am walking with a cane at this time and fear that I will end up in a wheelchair if I continue to get worse. I was always so very healthy before this happened to me. I was used to taking care of people, not people taking care of me. Perhaps I am being unfair to anyone by imposing my disability upon them. God help us all that have this horrible debility. | |
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| Fibromyalgia
Posted: 8/11/2011 8:27:38 PM | | There is no such thing as Fibromyalgia, it is only low T3 syndrome. In conventional medicine because we use thyroxine to treat someones thyroid issues, typically pain is not addressed. Fix that and it resolves. | |
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| Fibromyalgia
Posted: 8/14/2011 3:08:10 PM |
There is no such thing as Fibromyalgia,
You may want to consider prefacing a statement such as this one with "In my opinion,".
I believe that when one posts such a blatantly jejune declarative statement as fact, it may seriously undermine what little, if any, credibility they have.
IN MY OPINION, there are countless medical professionals (myself being one), who would disagree with your "statement of fact". | |
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| Fibromyalgia
Posted: 8/14/2011 3:21:26 PM | | Sure that is my opinion....I am addressing the WHY of Fibromyalgia...you can call it any name you like, I did not mean it doesn't exist......Put a patient on a combination thyroid and in my opinion it resolves.... | |
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| Fibromyalgia
Posted: 8/14/2011 3:25:45 PM | | When you dissect the term Fibro and Myalgi (painful muscles??) ok sure but what does THAT mean???? I am addressing what that meant to me.......You are right though should have explained and put in my opinion....thanks | |
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| Fibromyalgia
Posted: 8/14/2011 8:44:07 PM | khashi23 - No problem  | |
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| Fibromyalgia
Posted: 8/17/2011 12:52:54 AM | It's so nice to read this thread. I haven't had it very long. I was only diagnosed in Febuary/March of this year. it's difficult to explain to my family or to anyone who doesn't have it as well.
So, I appreciate all he post and good reading. Thank you. | |
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| Fibromyalgia
Posted: 9/3/2011 2:31:09 PM | | hi i suffer with fibromyagia at the high level at the moment it has ruined my life. my ex partner has just split from me as my meds have made me put some weight on and has over took my life. i was a independent women who brought three kids up on her own and now i feel like a 80year old women with the memory loss confusion . the depression is horrible and the stress makes it worse. very hard to stay calm.also you look OK on the out side but inside you are suffering. i hope your friend has not got it as bad as me..all i can say is be surrportive as you can. | |
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| Fibromyalgia
Posted: 9/4/2011 1:57:08 PM | | I have fibromyalgia. That hurts more than any kind of workout ever did. I have a product called "AB Calm," which contains calcium, magnesium, and vinegar in it, very effective. Also the use of multiple enzyme supplements, colloidal minerals, and oregano oil have proved effective in coping with this problem. FM is a variety of different things affecting you at one time. If you would like a link to a good site to buy such products email me. I am not promoting any personal business of my own, but have dealt with FM for years and have tried many things, some work, others to no avail. | |
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| Fibromyalgia
Posted: 9/10/2011 6:53:52 PM | FM is a pain syndrome. When I questioned the rheumatologist about it she explained some MRI studies which showed brain activity in certain centers that prove that it is neurological. I'm not a doctor or a scientist so I can't debate this but other than a healthy diet and moderate exercise generally helping because being healthy feels better, I have not found any diet or supplements to do a thing to help the pain.
Personally, rest combined with limited exercise are the only things I've found that help. | |
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