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 Author Thread: Fibromyalgia
 forumologist

Joined: 2/23/2008
Msg: 126
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Fibromyalgia
Posted: 1/23/2009 11:29:47 PM
Take a broad spectrum probiotic for months. NOT just with a couple of strains of bacteria. Not just acidophilus and bifidum cultures. It should have at least 10. Natural Factors and Udo's Choice make good ones. You'll find it in the fridge at the health food store. Don't by it off the shelf. It will deteriorate and be weak or dead. This is live bacteria we have a symbiotic relationship with that are essential to life. Eat LIVE yogurt and cheese if you can get it. Find a European deli that makes their own sauerkraut. It's fomented with probiotics naturally and is incredible for gut health. Don't eat the bottled garbage it's pasteurized and dead. It should be made with salt NOT vinegar. The IBS may get worse before it gets better but it will heal eventually when you have the right gut bacteria. Then all your energy will come back. It can take months but it works.

Antibiotics and pasteurized food have totally messed up our guts. That's the source of the problem. We need those bacteria to fight disease, to make vitamins from other vitamins (yes that happens in the gut),digest dairy, digest proteins and keep the gut lined with protective slime that acts as a nutrient carrier and lubricator. Without it you get constipated or irritable guts and you don't ingest nutrients properly.

Get your metal fillings replaced with porcelain if you can afford it.

Don't eat wheat or sugar. They are horrible for you. Ok, once in a while but you will see how it messes you up when you don't eat it for a week and then suddenly you go eat a big mac. Instant gut rot.

It took me years to figure this out but it cured me. They say there is no cure and that's just not true.

It's also a disgrace that doctors don't understand the basics of nutrition and gut health. They should be fired for incompetence.
 wicked smile

Joined: 6/17/2006
Msg: 127
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Fibromyalgia
Posted: 1/24/2009 2:31:01 AM
Chronic Fatigue syndrome, Fibromyalgia and Repetitive Strain all share the same pathology pattern and often depends on what your MD knows as to what you will be diagnosed with.
I helped with a medical symposium based on these and their diffential diagnosis. The name of the symposium was: Which came 1st the Chicken or the Egg?
In general all pointed to elevated inflamation, primarly from some over taxing physical stress/strain.
These included Whiplash injuries, occupational biomechanic and ergonomics, over-training in athletics.
Each persons physiology and potential allergens would aggravate the underlying cause. And therefore, so many ways of treating. Diet, anti-inflamitory measure and decreased physical stress seem to be the best combination.
 GoDiveNow-

Joined: 6/14/2007
Msg: 128
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Fibromyalgia
Posted: 1/24/2009 10:08:25 AM
I have perused this forum, and did find some references to massage therapy. I'd like to add a caution on the type of therapy used as well as make an additional suggestion. Following, some experiences I've had treating FMS & CFS clients. I discovered I one of my cousins suffers with FMS & CFS as well as myoencephalitis. He'd had this for years by the time I was able to offer this advice and his wife indicated he was unfortunately not willing to try anything else.....he'd been through the mill so to speak and gave up.

I've been a massage therapist for 11 years now. early in my career I treated a friend's friend who suffered with FMS and CFS. At the time, and not knowing what I later learned at a seminar given my Dr Leon Chaitow on FMS & Muscle Pain (book by this title published 1995-I don't know if he's updated since then) other trainings throughout the years. I provided a "deep" massage at the woman's request - fortunately my deep work is done from the less is more philosophy. Despite attention to her responses as I worked she reported she was in more pain following her session.

Subsequently, I've worked on others with lighter pressure work successufully. And a short while later came across another client requesting deep work for her FMS - moderating her treatment fortunately it did not cause her pain.

I agree wholeheartedly with the statements made to the effect, that each of our bodies are different and the condition does not present exactly what someone elses does. There are the typical points which will indicate FMS

About a year later I began studying Cranio Sacral Therapy with the Upledger Insitute. I have since treated clients presenting FMS/CFS with Cranio Sacral Therapy. This is a very relaxing, balancing body work which releases tension/paind gently - there is no chance of a client experiencing pain during or following the therapy.

You can read more about CST at the Upledger site as well as find a trained therapist using the site or loging on directly to IAHP.com. Since the institute teaches many other classes, there is a key which indicates the classes that each practitioner listed has taken. Of course possibly the more the better, but I would suggest looking for Minimun CSI & CSII (after that SERI & SERII) - in referring clients to this site for friends etc...I suggest they interview the therapist starting by asking them what type of massage do they do or specialize in....if CST isn't one of the first two modalities - you may want to look further if you have a choice. This work is taught through out the US, in Canada and other countries. My friends mother received follow up treatments for other issues in Denmark.

Hope this helps those of you that have to deal with this disorder.
 CFS-ED

Joined: 5/3/2009
Msg: 130
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Fibromyalgia
Posted: 10/19/2009 8:24:37 PM
if any of you have fibromyalgia and or CFS or CFS . and are single? Google in cfs and fibro singles for large group and chat
 CFS-ED

Joined: 5/3/2009
Msg: 131
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Fibromyalgia
Posted: 10/19/2009 8:38:45 PM
DID you read about the new virus they found in CFS and maybe fibro too.its new and interesting.There seeing what may help it already.please have a nice day Fibro/CFS/Ed
 Illusion Of Normalcy

Joined: 10/9/2009
Msg: 132
Fibromyalgia
Posted: 10/22/2009 4:35:07 PM
I have it and it sucks. Pain 27/7 that you just have to learn to live with. Will definitely have a major impact on any relationship I have.
 destinyplease

Joined: 1/20/2008
Msg: 133
Fibromyalgia
Posted: 10/24/2009 9:32:20 PM
I have had it for probably 30 yrs. Diagnosed about ten. I don't remember what a minute without pain is. I worked 2 or 3 jobs at all times until 2 yrs. ago. A yr. ago I stopped working all together. I take morphine and percs and gabapentine (not sure if that is correct spelling). I only sleep between 10-15 hours a week. It is so frustrating because I look okay so people think that there is nothing wrong with me.
I am not sure how the one man said it effected his relationships. I am frustrated because I would like to be playing volleyball and golfing daily but, I can only walk and swim.
Sex is great to relieve pain but, not in a relationship at this time.
I was really mad that I was dealt this type of life. Now I found out I might have cancer so I guess it can get worse.
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