| Thank you so much
Posted: 3/14/2007 2:51:07 PM | im lucky that his teacher and his care aid read over all of his case files before they ever reached him.
His kindergarten teacher ( that he has now) had a meeting with the other one they discussed my son (and other special kids) in regards to placement. His teacher wanted him instead of the other. She made a good judgement call because she knew she was the best qualified and had a very good tolerance in dealing with extra special kids. Shes a fabulous teacher and also his aid is awesome too.
Both have been there for years and I couldnt be happier. She has a smaller class... a quiet place and the bathroom is right in the room so my son can go quickly. His teacher even bought some pen lights and toy cars for my son as FIDGET TOYS as a gift.
My son hates the weighted vests and blankets but will sit with the weighted doggie in his lap. He has a bean pillow thats his in his cubby and when wants quiet time he goes to get it and lays on the couch for a few min for calm downs. Its only every once in a while that he has temper tantrums or will curse ( man i hate that) but we realize its when hes in sensory overload or there is too much going on at once.
If his environment is more controlled or he has a chance to warm up to an activity its not too bad. | |
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| Thank you so much
Posted: 3/14/2007 3:29:24 PM | Sounds great,like you guys are really communitcating.
good for you !
cursing is one of the few times my son talks and he uses it like an adult (appropriatly *shrug*) ,LOL little fart....
My son tests people to see if they will let him get away with bad behaviour or not, screeching at them or standing really close and staring (he is very big).... that is a problem at school with new people (and at home with sitters).
I don't know if this is accurate, but have you noticed that alot of people let special needs kids act bratty... not anything to do with sensory issues or any other acctual problem... just letting SNkids have thier own way all the time and making excuses for bad behaviour?
I run into this a lot with extended family members, especially the women, they think that my son should not have consiquences for his actions or even be told NO (or some variation of NO). | |
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| Thank you so much
Posted: 3/14/2007 3:45:30 PM | ^^^^^^ YES my MIL and ex-butthead do this. They baby him too much.. my son is only 5 but i think its ridiculous the way they treat him.
If he gets upset or pops a fit and I reprimand him in front of them they snap at me or go dont do that. WTFFFFF??? exscuse me?? Im his mother dont tell me how to handle my son. My ex is clueless how to deal with him and lives vicariously through us. Hes nothing but a big playmate to him and not really a PARENT.
It really makes me angry trying to keep rules the same at both homes. My son knows hes not allowed to throw.. hit bite ect but for some reason I find out he has done it at grammas and not gotten ic trouble for it.
Its frustrating and I also have told this to his therapists how pissed I am (in front of everyone to hear) that there needs to be consistency between the 2 homes.Routine is so important to him and his progress.
Ill never forget the looks i got at a birthday party from the mothers who point blank asked me why my son has an aide..and why he goes in and out of class 5 min early. No one knew my son has a problem.. for gods sake JUST ASK!! and dont go yacking behind my back and getting PO"D that my son gets speacial treatment.. grrrrrrrr | |
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| Thank you so much
Posted: 3/14/2007 4:55:25 PM | i have several clients with autistic children and they report fairly decent results with an herb called ginkgo. typically used with alzheimers sufferers, ginkgo helps to stabilize brain activity. it can also help with co-ordination problems, particularly balance. lecithin also seems to have a beneficial effect on the brain. it supplies choline and inositol, which help liver function as well. make sure the child gets enough calcium. it has a calming effect and low levels can definitely affect behavior. people tell me that free-form amino acids help with adhd as well as autism. these really improve concentration.
absolutely avoid wheat, dairy and processed sugar. this will probably be the biggest challenge, particularly with children. but these interfere with proper nutrient absorption and cause their own problems.
yoga seems to help as well. i don't know a whole lot about yoga, but i have had people tell me that autistic children respond well to it.
also ~ very important ~ parents need to care for themselves as well. this condition stresses the entire family and everyone can benefit from additional b vitamins, calcium and extra vitamin c.
i hope this helps someone. the recommendations come from clients in the same position as many of you here. | |
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| Autism Parents
Posted: 3/14/2007 4:56:50 PM | trikers I apologise for the caps?
sorry I am just a single parent who was having a very bad time with my son last night, I never realised typos where such an issue here, perhaps people like me should not bother posting especially if in the early hours of the morning we do not notice our caps lock is on.
one day we will aspire to you perfection | |
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| Autism Parents
Posted: 3/14/2007 4:58:32 PM | lol its ok.. not a big deal.Sorry if it seemed like i was insulting!!!
and i know how hard it can be after a trying time with our kids... | |
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| Autism Parents
Posted: 3/14/2007 7:09:09 PM | Hey all
Something intresting happened the other day.
My son Hates babies, he doesn't really like little kids ,but he really hates babies,....or so I always thought.
My daughter, one of my nieces and my nephew all have birthdays very close together, so we have one big party for all.
This year we went to the wildlife park, and my son got to try out his brand new stroller. It is kinda a cross between a stroller and a wheelchair, and he really loves it, it give him some kinda of grounding.
Anyways the newest baby was at that time only a few weeks old and her crying had set my son off more than once that day. Later just before we were leaving I was holding the baby, and she was just laying there happy not fussing. My son looked up at me and said "Baby please" which its self was shocking because he is mostly non-verbal. So I crouched down beside him and let him look at her, then to my shock he very gently stroked her cheek and forehead and put his arm out like he wanted to hold her. I couldn't let him of course she was far too young and he is too unpredictable.
So, I said not now and then he leaned forward and gave her a sloppy kiss and smelled her head (he often smells things). Then he pushed my arm away from him(but still very gentle).
We were all so shocked, I still give the stroller credit, I think it helped him focus so that he could see past the noises of a baby and acctually be curious about her instead.
Neat huh? | |
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| Autism Parents
Posted: 3/17/2007 6:20:38 PM | Last night I watched an interesting movie called "Mozart and the Whale", I don't know if I would call it accurate, but it could be somewhat.
It has some interesting characters, and may have given a little insight as to why my son gets sooo upset when I clean his room. | |
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| Autism Parents
Posted: 5/12/2007 12:12:36 AM | Just wanted to share some news about my son.
My son (now 3 1/2 years old) was diagnosed with autism last may in 2006. Me and his mother placed him in a daycare that could help with out and they have done an awesome job since then. Anyway, for christmas, we bought him a bike with training wheels. We didn't show him the bike until a couple of weeks ago. Just the other day, I had him on his bike and was holding on to the handle bars. We went a lap around the block and came to our home. I asked if he wanted "more" (he knows how to sign this among other words as well) and he gave me the sign with his hands and was very excited. So we went for another lap around the block. This time when I asked him for "more", he grabbed my hand and pulled me closer to him, then he gave me a big hug. He didn't let go for a good 5 minutes. I tried to fight back my tears of joy since he doesn't do this to me very often and I didn't want him to think there's something wrong with me crying. My son made my week right there. It's like his way of saying "thank you, daddy". Just thought I let some of you know. Take care, friends. | |
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Gavel
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Joined: 4/8/2007
Msg: 335 | |
| Autism Parents
Posted: 5/12/2007 3:14:19 PM | Hi Everyone!!!!!
Can't believe that I haven't seen this earlier.
I agree with BossyLady, "MORE THAN WORDS" book is an excellent resource. I gave a copy to my son's school and the teacher and his Ed. Assistant both read it before he started school. I got the book when I attended the "Hanon Program" which is a workshop for Parents on how to help their child begin to communicate. My son didn't have any language, just echolaliac speech. The woman who facilitated the workshop worked with each of the parents in their homes and video taped the progression. The purpose was to encourage any type of request from the child and label their protests to give them the language.
I watch it now and can't believe the change.
My son was diagnosed at 2.5 and started IBI (Individual Behaviour modification) . He is now almost 9, in a regular class with a full-time EA. He is amazing. It has been a struggle, having people stop to tell me off over the years. Not something that I responded well too in my 20s .....LOL
A friend of mine gave me a card that says "the child you have just encountered has a diagnosis......"
Don't really have to use it much because his sister is getting pretty good at explaining life to these people.
Out of curiousity.............just wondered if any of your children had surgery for Tracheal Esophageal Fistula first day they were born? | |
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Gavel
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Joined: 4/8/2007
Msg: 336 | |
| Autism Parents
Posted: 5/13/2007 6:49:07 PM | Hi Again,
I just wanted to say that if you have any legal questions regarding education, IEP's and such, the Coalition of Inclusive Education are very helpful.
I have been involved with them since the beginning of the year when I had started my son and daughter in a new school. The school did not want to maintain the current IPRC status of regular class with EA support. The coalition gave me some very good advice specific to Autism and the legal requirments. We eventually placed both of our kids with a wonderful school within the Catholic School Board system. All involved were truly amazing and what a difference. They were very collaborative and welcomed any "knowledge" that we could offer.
Hope you all had a wonderful Mothers Day | |
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THW396
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Joined: 12/29/2005
Msg: 337 | |
| Autism Parents
Posted: 5/14/2007 10:05:50 AM | | My name is Tom, my son is Autistic. Its nice to meet you. I share the same feelings and happines with most of you, I am very proud of my son. Cam is in a normal kindergarten class and is functioning as well as the other kids. I unfortunately do not get to talk to him or see him. But I learn things and check as much as I can to keep tabs on his progress. God Bless you all and your wonderful kids. | |
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| Autism Parents
Posted: 5/14/2007 10:39:51 AM | | hi my son is adhd and as only slight autism,but even that can be hard he as obsessions wiv the time and football results he as to look on the text every advert on tv to see wat the score is but i find it very rewarding wen he tells me he loves me and gives me big hugs i love him to bits and wouldnt change him for the world and i say that u wouldnt too x | |
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| Autism Parents
Posted: 5/15/2007 7:40:09 AM | | My daughter who just turned 2 in Februaury was diagnosed with mild autism in march. She started her ABA therapy today. I bought her some videos a month ago which are helping her a lot with her speech. she now says a lot more words than before. As anyone else bought the baby bumblebee videos for their kids? I am just recently going through a divorce and my soon to be ex has had nothing to do with his daughter since he found out she was autisitc. I feel so alone sometimes which I know al of us feel from time to time. My daughter is my sunshine and I could not see my life without her in it. She is so smart and beautiful and funny ....she puts a smile on my face everyday especially when I am feeling down about my divorce and going through this hard time alone with no help. I do not understand why my ex does not want to see his child ...he is even refusing to help financially until we go to court and they make him pay something. He even refused to buy he a pack of diapers. I just want to wish you all the best and good luck with your beautiful children that god blessed us with. | |
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Gavel
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Joined: 4/8/2007
Msg: 340 | |
| Autism Parents
Posted: 5/15/2007 6:27:47 PM | SARAI-
That is amazing. Good for you for being such an awesome advocate for your son.
I am actually speechless. I will think of you and your hard work before I make complaints about my life.
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| Autism Parents
Posted: 5/15/2007 8:12:25 PM | Hi Takeitease,
I tried to email you about some questions regarding the school system and classroom supports. Your restrictions prevent me from sending...Can you email me?
Thanks | |
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| Autism Parents
Posted: 5/15/2007 8:54:51 PM | | Hello all Im a single mom of 2 wonderful child. My daugher is 12 and my son soon to be 10 is autistic. He is on the severe end of it, does not talk, nor is potty trained. But is so loving, loves to be held and touched. It really makes me when people see my son and judge him. I dated a guy who spent couple hours with him and told me he needed more discipline. But yet when met my son we was in a new surrounding and new place. How can u judge a child on one visit.? My son was almost 2 when we got the official ''u have a autistic child'' speech. I feel some days Ill always be single but I wouldnt trade my son or my daughter for the world. When he comes up and crawls in my lap or comes up for a hug just makes me melt. He has a wonderful para at school and she does wonders with him. The school is really great with him as most of kids in my town. Its the adults that irk me. I would love to have other parents yahoo me on yahoo or drop me a line here. I could always use a friend who understands the day to day struggle/joy/battle/loving of special needs child. Some one once told me why dont u send him away, I just looked at them and ask hes me son why would I want to do that for?! | |
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Gavel
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Joined: 4/8/2007
Msg: 343 | |
| Autism Parents
Posted: 5/16/2007 6:38:37 PM |
Some one once told me why dont u send him away, I just looked at them and ask hes me son why would I want to do that for?!
Did you sign them up for public execution? HAHA
Lostangel: Have you been on Autismparents in Yahoo Groups. I can't remember the exact name....but I'm sure if you search you'll find it. It was an awesome forum. Teachers, lawyers, IBI workers, parents, everyone on it. I found it to be not only a useful resource, but a source of comfort during extreme lows for me. And now, you have this forum as well.
I think this one will be around for a while.
My motto, only to allow those in to our privileged family circle, that is willing to understand and evolve with us................does it always happen? no. Does it make me sad? Yes. But, my kids are soooooooo loving to me and towards each other. That is all that counts. | |
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| Autism Parents
Posted: 5/16/2007 7:26:27 PM | | I was just wondering if any other parent has bought their children the Baby Bumblebee videos? I did about a month ago and wow have they ever helped my daughter develop her speech. I am very glad I bought them. Has anyone else had any results from these videos? I would recommend them to anyone. | |
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Gavel
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Joined: 4/8/2007
Msg: 345 | |
| Autism Parents
Posted: 5/19/2007 6:15:55 AM | Ok, sorry, I just read what I wrote :)
Sorry I didn't see your request earlier.
I'll be on later tonight.
Bye for now.
Julie | |
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| Autism Parents
Posted: 5/19/2007 1:04:31 PM | Well, here's mine..single mom (divorce still pending since my ex and I don't agree on terms) of 3 boys in FL. They are 12, 7, and almost 5 (june 17!). My oldest boy (math genius) has been diagnosed with mild Autism and ADHD, and I agree. My 7 yr-old was diagnosed with autism as well, though I don't agree with his diagnosis, and having a truly autistic child I have some experience with this! My 7 yr-old loves to play with other children, he lives for his friends and has no problem with imaginary play. I'm sure he has some learning disability, as he has problems, I'm just not sure what they are. But even under the autism label, he is getting more than enough therapy, and has been excelling in his schoolwork and his level is equal with "normal" children of his age. He seems normal to me, of course, but in school he is in the "special" class as he needs a little more one-on-one time and explanation from the teacher to complete his work. He is a math whiz too! So, he can do all the work, but requires slightly more coaching. My littlest guy had a language delay, has gotten speech/language therapy, but will be in a mainstream kindergarten class and is just as good at math as his brothers. So that's them!
As for me, and dating, whether or not my children are autistic has had no bearing on my dating life, for this simple reason: my dates and my children do not meet! I was seeing a guy last yr for close to a year, and he was never around my children, even once. Unless I'm dating someone that I think I would be marrying or living with, there is no reason at all for him to meet my kids. Personally, I would have to be seeing someone for quite some time before I would make the decision that it would be serious. At this point, if we both agreed, he could meet my children to see whether or not he could tolerate them, to see if the 2 of us would want to take things further.
My children have met almost every woman my ex has dated (they come and go) and I have friends whose children have met all their boyfriends. But most children can get attached to people, and will want to know after it doesn't work out, where the bf/gf has gone. I understand completely, that many parents don't have the options to leave their kids with others very often, or at all, and don't have it as easy as I do. I moved to a rental house around the corner from my ex. He keeps the kids when I have dates. But I fully understand not everyone's ex lives in the same city, or even state, assuming they even have any contact with them at all. I remember when their father and I were together, and tried to leave the children with a family member (sitters were out of the question) and my oldest would scream the entire time, whether it was 30 minutes or 3 hours. Sitters are quite a challenge for autistic children, again, assuming you can even afford a sitter, I can't anyway so that doesn't even matter.
Anyway, I've gone on for long enough (bad habit of mine) so I'll end it here. I think this is a great forum to have, and look foward to reading and posting on here! Take care all....Laura | |
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| Autism Parents
Posted: 6/14/2007 6:52:21 AM | | Hi all, I just found this site and just started reading some stories, I'm a single daddy of my little angel Lorelei, she is 4 yrs. old and has severe autism. I've only read a couple things posted so far, but I'm very exited to have found this site. I love the business card idea. Has anyone heard of the buttons and T-shirts that read : I'm not misbehaving I am autistic.. Kind of cool I think - and then there's a part of me that is like I really don't need to explain my daughter's behavior to a perfect stranger, but the buttons are kind of a back at you! , to the people who chose to stare and insist on having an opinion on other peoples private lives and issue's.Thank You for letting me share. | |
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Pucks
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Joined: 10/14/2006
Msg: 348 | |
| Autism Parents
Posted: 6/14/2007 12:44:03 PM | I do not have autistic children. But i have worked with people who have autism.
There people first. They have abilities and we should focus on these not there disabilities. I grew really close to one man with autism. His iq was less than 70 and he had the mentality of a two yr old. (severely developmentally disabled)
His smile and demour was light in my day. He had a great personality and i looked forward to hanging out with him.
Sometimes he expressed behaviours but this was often his way of communicating. He could not speak verbally. It was awesome to teach him visual cues/aids to assist in his communication with us. Patience is the key with people who have autism. Lots of repetition is also needed coupled with understanding.
Very rewarding work. | |
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| Autism Parents
Posted: 6/16/2007 11:55:49 AM | Hi all...
New to this... at least on the parent side... but my 10 year old was diagnosed with "Autism Disorder" yesterday through the UCLA Autism Clinic. (And yes, I said 10 year old!!!)
Have taught special ed, but am now on the other side of the fence, so to speak.
Will be looking into support groups and such... but if you want to just write and say "hey", this struggling single mom could sure use the encouragement!
p.
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| Autism Parents
Posted: 6/19/2007 10:10:52 PM | "My 7 yr-old was diagnosed with autism as well, though I don't agree with his diagnosis, and having a truly autistic child I have some experience with this! My 7 yr-old loves to play with other children, he lives for his friends and has no problem with imaginary play. I'm sure he has some learning disability, as he has problems..."
There is misconception that all autistic children share the same symptoms. Many very higher functioning autistics, particularly those with aspergers, do appreciate the company of other children and engage in imaginary play. Its a very large spectrum and what is true of one or even many children with higher functioning autism is not necessarily true of all of them. They are NOT a collective.
In fact, some children with aspergers syndrome actually excel in areas of abstract learning and are very intuitively insightful about people around them, just not in a way that involves interaction. The this may seem to be a contrast with what is expected of higher functioning autistics, it does occur. You may be surprised with what some of these children discern in the behavior of other people, even though they may not seem to have the ability to "read" body language. | |
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