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| Autism Parents Posted: 6/11/2006 8:27:16 PM | blueeyes6012
If your here in Surrey.. and have the IIEB funding.. or something like that.. go to the Autism Society of BC. They have great links to all the practitioners who are licenced to accept the funding the Dollars..
One thing I know they started with my Son.. who is finally just starting to become verbal. He is 6... going on 7 in a few months here. But with him they did the whole Pic Symbol thing. Works in the way that you create a pic for everything they want.. And then getting them to get the pic when they need or want something...
First it will be alot of you.. when you give a cookie, you hand them the cookie with the Picture of a Cookie ontop of it.. and then put the picture down somewhere it's accessable to them. A common one is to make a Strips of Velcro.. and put them on the Fridge and the apply the pics to that.
Well after a little while instead of pulling you to an item... after making the association... which will be alot quicker then you would think... He will then take the picture and hand it to you...
At this point the the speaking really begins.. When he hands you the picture for the item.. you say the word. And after a few times you make him say the word with you before you take the pic.
Soon he will grab the pic, and hand you the item and say Cookie... and then after time.. depends on the child.. some it will happen within a few weeks.. some a few months.. they will start to realize they don't need the pic to say the word.. and presto.. you have not only taught them to say the word... you have taught them abstract thought... something alot of Autistic children have trouble with.. and you have taught them word association through abstract thought. | |
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| Autism Parents Posted: 6/11/2006 8:39:14 PM | hi spider,
tried underwear, problem is he doesn't care if he is dirty, or will just take off pull-up and run naked, arrrrggggghhhhh! If I ask him if he is dirty, will say no, then I ask if he is telling the truth, he says yes, so then I take off pull up and ask him what is in it, he says poop. ... After he took it off and streaked naked around the house with a dirty butt one too many times one day, got so aggravated with poop on sofas after he bounced all over them that I actually tried duct tape once, ok, I know, but I lost it, all it did was teach him to run faster, not to mention that a little diligence and hard work on his part and he gets it off anyway...
Gave the G/F C/F diet over a year, secretin tried twice, doctor said should have noticed something if it were to have worked, constantly using reinforcers, and incorporate informal floor time in all we do, as I do speech issues, and such. Did a lot of research, and through trial and error found the best approach for my son, and the best school program, moved to get him in the best district. The problem with the GF/CF was once he started school, was really difficult to monitor what he ate, hands are faster than the eye, and even a taste is enough to erradicate the diets effectiveness. Was worried when we went off, but noticed no difference at all. Still keep up on the vitamins, and actually he has to be one of the few kids around who isn't interested in junk food, loves raw carrots, cheese, turkey breast cold cuts, salad, strawberries, grapes, kiwi, string beans, broccoli, pasta with tomato sauce, hard boiled egg whites....although he is partial to mini-oreos and chicken nuggets. He doesn't like ice cream, pudding, ices, think it is a tactile issue, and will not eat meat to speak of other than poultry. Overall, he is really healthy, slender but solid, strong as an ox.
Energywise, he is off the wall, up till all hours, not a brat or bad, just awake, falls asleep by 11 if lucky, and is full of pep when I get him up at 6:30 am for school. On the nights that he is up till 12 or later, seriously consider trying valariun root, heard it is safe, but still not comfortable with it. Although, would really love some adult down time. | |
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| Autism Parents Posted: 6/11/2006 9:05:39 PM | Juzlookin
You said you tried underwear... But if you let him just go naked from the start... Like a day when your at home.. no where to go for the day... let him run around naked fully for the day.. Does he go to the Bathroom then as there is no where else to go. Not sure if that makes sense..
And I found with my Boy that reg underwear didn't do the trick... it was Boxers.. he needed that feeling like there wasn't anything there for him to go in, that was tight against his skin.
And the Duct Tape... LOL.. thats hillarious... I love it.. We've all been there.. don't worry.. It's like alot of people don't like the fact that I call my Son a Dummy at times.. But when he is running away and runs straight into the wall. Falls on his butt and cant figure out how he got there... Well he was just being a dummy..
Another one I do with him... I will let him try things.. knowing full well he may hurt himself a little... Would never let him seriously injure himself.. but the odd bump or bruise now and then wakes him up a little..
I hate it when parents of Special Needs children in genral over coddle them... if that makes sense... They are kids afterall, and are going to make the same dumb mistakes we did growing up. Sometimes they need to touch the hot stove to realize.. don't touch it again. | |
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| Autism Parents Posted: 6/11/2006 9:11:47 PM | juzlookin35... no we don't have ESE in Ohio. Or at least not in my area of Ohio. The schoolboard and psychologists were really quite thorough with his testing and assessment, and I'm quite pleased with his placement. He has a wonderful teacher who is quite tuned in to him and his behaviors, what might set him off, etc. They also have an aid in the class who gives him quite a bit of one-on-one attention. My son was non-verbal til he was about 3 1/2 - 4 yrs old. Good speech therapy brought him out of that. In kindergarten he is in speech, physical and occupational therapy. He's very intelligent, his reading skills have been assessed at beginner 2nd grade level, he can do things on a computer that would boggle the minds of programmers, lol... to all appearances, he "looks" like a "normal" little boy.
But he has the social skills problem.. LOVES people and wants to hug everyone! He doesn't understand why he can't do that, and why some people just don't want to be hugged, lol. Plus he's extremely sensitive to noise, touch, textures, bright light, tags in his clothes... all tell-tale Asperger symptoms. When he was in the big classroom, before he was placed in spec ed, he was SO aggressive! Hitting, poking, kicking, pushing, screaming, running out of the class and down the hallway... oh GOD it was a nightmare!! Now in the small classroom, those aggressive tendencies have all but disappeared. He is still very emotional. but he is emotional when he's tired, same as I am. And the Risperdal makes him very tired, as they are not as physically 'busy' in the small class as they were in the big one. We've decreased the dosage, but are seeing more of the ADHD symptoms now, rather than the ASP symptoms. Which is why we are weaning him off of the risperdal and going to treat the adhd. | |
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| Autism Parents Posted: 6/11/2006 9:39:16 PM | Hi Spider,
Have been there done that, have left him naked for hours at a time, even used the laxative powder prescribed so that when I see him making the "poop face" I can scoop him up and run for the potty, dr said that once he releases a full stool on potty and feels relief of not holding it in, fear should be overcome - HAH, not! The teachers at school call him buns of steel, he can squeeze his cheeks so tight to prevent them from wiping him. As the gastro specialist said, what he is doing is releasing just enough stool to get rid of the feeling of having to go, hence why he will poop tiny turds, call them power pellets, 12 times a day....
Definitely don't coddle him, unless it is a situation out of his control, like when he couldn't handle touching being in a store, did it step by step, walk past store few times, days later go in then out, then next time buy one thing then out, and praise and reinforce when he doesn't tantrum, etc....step by step....now in stores just use good old fashioned bribery, if you want cotton candy you'll get back over here, stop touching that, etc....
He is a hoot though, he can do the crocodile tears at the drop of a hat, funniest is when he can't keep a straight face...lol
Hi Ohiosweetheart,
My son has been reading since he was 2 1/2, self taught and was so bored with singing alphabet that started singing it backwards, I can't even do that without sitting and thinking about it. When he was 3 he was picking up my books, took a little for me to realize that he was really reading it, not good "he ravished her body and threw her acroos the bed..."
There is pretty much not a word he can't spell, amazes the teachers at his school, they keep trying to come up with one, and computers, he is amazing at too. But like your son, 'to all appearances, he "looks" like a "normal" little boy.'
Can so relate to the social skills issues ".. LOVES people and wants to hug everyone! He doesn't understand why he can't do that, and why some people just don't want to be hugged"l, it's so hard to explain social norms and the 6" personal space rule.
Should have been there at the beach when he was 2 1/2 , his favorite tv commercial at the time was Florida Center for Cosmetic Surgery, all the women with huge boobies, so as soon as I saw this amazing looking woman kneeling on all fours in the sand with her boobs hanging out, knew he was going to go for it, sure enough he face planted..... | |
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| Autism Parents Posted: 6/12/2006 7:23:38 AM | OMG noooooooo he didn't... lmfao!! that is so funny! | |
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| Autism Parents Posted: 6/12/2006 8:35:01 AM | blueeyes6012: I highly reccommend the book...More Than Words by Fern Sussman. It is an amazing course in how to help our children communicate! Good Luck to you!! | |
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| Autism Parents Posted: 6/13/2006 1:54:22 PM | Yes thanks for the reply...
I am working with the pecs with my son. He knows how to use them as we have been using them for a year now but he still doesn't verbalize any words. He makes a lot of baby babble sounds and he says nana, mama and dada for everything. I can see he wants to talk so bad sometimes just to make me understand him. As you can imagine this is very frustrating for both of us. Any way thanks for the great advice. Just wondering if anyone knows how the whole IEP thing works? My son statrs kindergarten in Sept and I still haven't had a meeting with the school or anyone yet. Should i be worried? I was told we would have a meeting with the school and the school board by the end of may yet i still haven't heard nothing. If anyone knows how this process works please help me. | |
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| Autism Parents Posted: 6/14/2006 4:44:40 PM | blueeyes
The IEP (Indvisual Education Plan) is where you will sit down with a few people... mainly the teacher your child will have. A couple of SEA's if they are provided for your child, and any other therapy and workers who will be doing regular work with him.
Essentially because School for the most part will become the biggest part of his life for next few years it is considered important that everyone is on the same page with where you want to go with your child.
Average meeting takes about an 1-2 hours to complete. But during the meeting the workers in the school will learn from you, and the other workers you have with him right now how is... Things he likes... Goals you would like to see acheived... Ext.. Lots of questions will be asked.
And then the school will list out things they can provide for your child. What structures are inplace... And together the idea is for everyone to re-enforce the same ideas.
The only part about the process I don't like, and don't get me wrong these are wonderful people who want to see your child succeed. But the part I don't like is how they sometimes make you feel that they know whats better for your child then you do.
At the end of the school year another meeting should take place where you review goals laid out in the begining.. see what was achieved.. and then you can ask questions like what you should maybe try and work on over the summer to prepare him for the next stage.
One thing I learned even though our children have special needs... we tend to fret more about them then we really need to. They are kids after all.. And kids will be kids.. and they all make Mistakes, and fumble here and there. And trust me as parents of regular or special needs.. we fumble all the time as well. | |
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| Autism Parents Posted: 6/14/2006 6:38:24 PM | I have a 13 year old brother with autisium. I still live at home with my parents so i have had to learn when dating how to ease people in to the situitation without making them turn around and run the other way. The best way to start the realationship off is to let them know straight forward how ur child is. Give them in detail things that your child may due make sure they know what kind of behavior to expect. If they feel alittle out of the situtation at first the best thing to do is give them time. They will come around and if they dont they were not the right person for you in the first place.
2nd it is always best to start talking about the person to your child. give them time to get use to the idea. let them know things they can do and cant do so when the time comes to meet they will have a little bit of an understanding who this person is. I know with my brother things always go alot smoother when i take the time to explain to him whats going on.
Its a great idea that you want to start an out reach program for people in these sitiuations. I know from listening to my parents it best to be able to talk to other adults and hear from there experiences. From anything to school, medication, behavior, and family. | |
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| Autism Parents Posted: 6/14/2006 8:23:11 PM | Angela060987 Autism Parents Posted: 6/14/2006 6 24 PM
"I have a 13 year old brother with autism"
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just wondering if puberty is as big an issue for kids with autism as some people have said that they regress, or get aggressive, etc.... | |
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| Autism Parents Posted: 6/14/2006 11:15:21 PM | | my brother got more aggressive. my mom cant stand up to him because sometimes he is like a ticking bomb. he has completely towered over her which i think frightens her that one day he might reallhy hurt her | |
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| Autism Parents Posted: 6/15/2006 5:58:07 AM | Hi BossyLady, I just found this site and was wondering if you could give me some ideas about my 15 year old daughter. She has been diagnosed by two neurologists - mildly retarded & chemical imbalance. She was a normal baby except for ear infections. When she went to preschool they said she played a lot by herself and didn't catch on like the other kids. She's been in Special Ed since she started school. She has a low IQ, social problems and anxiety. Otherwise she is a "normal" teenager. She takes care of herself, does housework, and takes the regular bus to school. She has no behavioral problems. She wants to be like the other kids (although they ignore her) except for the Special Ed kids. This Saturday I'm taking her to a neurophyscologist. My ex-hubands Ins. won't pay, so I will be going into more debt, but feel I need answers. I can't put her on any drugs (Concerta) was prescribed, because my ex would go ballistic. Their going to do a digital cortical scan to check brainwaves to see if shes ADD or something else. Do you know if this will be worth the money I'll have to spend? My daughter pleads with me to help her, she knows shes different and is very alone. Thank you for any ideas you have. | |
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| Autism Parents Posted: 6/15/2006 7:22:59 AM | Coloradocarol
First of all this is why I'm a true propoent of Universal Health care like we have here in Canada. The Candian System isn't perfect, and could use some tweaking. But stuff like what your talking about should not put you into debt. Health care... exams... even needed medication should taken on by society as a whole, and all people should pay into it.
But other then that I wish I could help you more. It's strange to me though that a neurologist would use a term like midly retarded. Thats such a genral term. It's like saying you have a sore foot.
See another one I don't like is the idea of Special Ed Classes. Another one they have done in alot of Districts here in British Columbia, is abolished Special Ed. And instead taken on the idea of intergration. The thought process is 2 fold. 1st how can you expect these children to interact with regular children if never given the chance to. 2nd the other children start to learn more compassion for such people in society. And as a matter fact studies have shown that in the younger grades where this takes place the children will even go as far as to try and help the Special Needs children along.
Only downfall to the system though is the funding required to support such a model. Requires alot of SEA's and there aren't enough of them to go around. So only the most extreme get the proper assistance in the classroom they need. While the others tend to become the teachers wosrt nighmare because they don't know how to deal with this.
But I do wish you luck in your quest for answers.. Sorry about rambling just when I read your post got me thinking about things. | |
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| Autism Parents Posted: 6/15/2006 9:14:06 AM | Coloradocarol: I have emailed you privately....hope I have helped a little bit. SpiderHam77: I read your post and thought I'd offer my 2 cents regarding special needs classes. Here in New Brunswick, we have FULL INCLUSION. I have 2 boys on the spectrum ( and one not) and have seen both sides of the coin in this issue. My middle son is fully included, with no modification to any program, no aide, everything is "normal" (whatever that is)and is doing famously.
My youngest son, is another story. He was in regular classes until grade 2. In my school district, there are special needs resource rooms and some life skills rooms. While my son was in regular classes, he'd scream, cry, self stim by banging his face and head and totally disrupt the entire class. He did this with the support of trained TA's. He was overstimulated by the amount of noise and confusion in the room, as well as the discussions that were going on daily, were too advanced for him, and he grew more stressed every day. Relunctently, I agreed to have him placed into a special needs resource room. It broke my heart. Now? He is grade 3 aged, and only approximately 3-6 months behind his peers. He does attend the regular class for Math, Spelling (he spells at a grade 5 level) Art, Music (if he wants to) and Phys.Ed. He enjoys the interaction but he certainly will ask to be removed when he needs to. By doing this, it has reduced the amount of stress he was under, which reduced all the behaviors that went along with his stress levels. Now that he is not a disruption, the kids in his grade 3 class accept him, try to play with him (some are even successful) and has grown to become considered verbal.
I do not think full inclusion is best for all kids. Some cannot handle a full day, such as my son, immersed in the hub of a regular classroom. The higher the grades, the harder it gets. I do agree that they need to be exposed and integrated to a regular class as much as possible, it has to be designed to each individual child by the parents and resource teachers. NB has just won a battle with the Department of Education to keep our Resource Rooms open, as there was a threat to close all of the Life Skills rooms. To some of our kids, they need to learn toileting, money handling and social cognition, not Math and History.
Hopefully the Autism Bill being introduced to the Federal Goverment will get passed and the funding worries would be worrisome no more.
Just my 2 cents....ok...10 cents by length lol | |
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| Autism Parents Posted: 6/15/2006 10:47:54 AM | regarding special ed, my son is in an awesome program since he was 3. Public school, program based on one in california. Only for kids with autism, and classes divided by severity. Ratio is one teacher, 2 trained aides for 6 kids. There is an amazing sensory lab across from his classroom.
All the kids in the school are educated about autism, and there are kids who are "peer pals", they each select a child they want to work with, and come into the class a couple times of week for interaction and play. The kids are integrated at recess and lunch, and when the child is ready, integrated into certain mainstream classes as they can handle. They are included on field trips and other school activities, and the school holds fundraising fairs that everyone participates in to keep funds flowing in to improve the program.
For every IEP his speech and occupational therapists are there, as well as his behaivoralist and his classroom teacher. We all discuss his goals, how he progressing, and what needs to be increased/decreased. We have monthly parent meetings, and have guest speakers.
When I pick up my son, it is so nice that all the "typical" kids say good-bye, know his name, even the principal adores him. I have worked so hard on his self esteem it is nice to know that he has the same support at school. I don't know what the future holds as far as when he gets out of elementary school, but for now, I am happy with the school program.
He has just turned 6, and the changes in him since he was officially diagnosed at 18 months have been positive. Of course with age there are new issues, but for the most part, I just take it day by day, and am thankful for what a happy child he is, and for the strength of the love between us. | |
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| Autism Parents Posted: 6/15/2006 5:57:11 PM | ok here is an update as to how the meeting went yesterday with his teacher.. his behavior consultant and his speech therapist.
Not too bad but alot of my q were really not answered. I got a huge 10 page letter from the behavior guy and i was in utter shock as to what my little guy was saying in class. it seems that his potty mouth goes into overdrive at school and not so much at home. The list that hus teachers put down almost made me spit out my coffee.
Now what was kinda neat is we all agreed to a new technique to calm him down and stop the tantrum in the bud instead of him blowing up. We are going to hold up 3 fingers... blow out 3 deep breaths and count one....two....three....if we can train him to calm himself down we can aviod alot of anger and blowups.
Another thing is we need to wean him off his dependance of small objects in his hands. Because of his sensory issues it calms him to hold objects for long periods of time. This we all agree is getting in the way if his attention span and also it may be hard for him to learn to grasp a crayon ect and start to draw and whatnot.
My son went to the Gp today with my ex ( finnaly) to follow up on his potty problems...to rule out allergies and a perhaps get his stool tested ect. We dont think its behavior related maybe only in a control and lazy way....but we have to rule out a medical problem first.
Now they told me i have to be an advocate for my son regarding a special teacher but not to go in with guns blazing screaming for a full time teacher!!!!! WTF??? UHHHUUHHUHHH....... ok you bet yer ass im gonna do whatever it takes to get my son everything he needs for school...... im so very not looking forward to this...... yikers... | |
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| Autism Parents Posted: 6/15/2006 8:54:06 PM | Tinker:
I know the feeling with the letter type thing.. and being in shock. My Son's biggest problem has been the bolting in the past. So we had to call a Saftey Plan Meeting. And when I started hearing all the behaviours my son had been doing it made me feel like I'd had helped to create a little Devil Child.
One of the SEA's had to pull into perspective for and tell me these are the worse behaviours... Just ones that need to be addressed. And that they seem to come in Spats.. and usually when they told me the dates they were going on something was going on in my personal life.. Like moving.. or my Mom going on Vacation for a month... stuff like that...
Didn't realize till then how much these things really effect him... because usually with me he is really good... And it's also one of those things I don't notice alot of his behaviours... Not sure if you all encounter it.. just sorta imune to it all... and when this happens.. this is what you do... Ext... And it beomces like a clockwork... | |
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| Autism Parents Posted: 6/15/2006 9:05:24 PM | I am completely FOR special ed, altho I do agree that it is not for all children. It IS for my son however. He was miserable in regular class, too many distractions, too many kids, he was aggressive, out of control, it was a nightmare. Now that he's in a much smaller classroom with a teacher who specializes in teaching AS children, he has settled down, and is a totally different child.
Thank GOD for special ed! | |
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| Autism Parents Posted: 6/15/2006 9:12:06 PM | Trikersbaby.... my son has the thing too about having to have something in his hands all the time. It's usually either his Hotwheels cars or one or two of his action figures... something. I'm just glad his grown out of having to put them in his mouth all the time!
Spider... my son is extremely sensitive to any changes going on around him as well. We have to ease him into any new situation slowly or he reacts aggressively.
Question.......... do any of you have problems taking your AS kids to like, parades? Fireworks? NO WAY can we take my son to either... the noises totally send him over the edge! | |
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| Autism Parents Posted: 6/15/2006 11:49:39 PM | Ohiosweetheart
You know it's funny... He's a not big fan of large crowds in a closed environment. So stuff like a movie. I tried to take him a couple of times.. but it was way to much... But Parades... He loves marching bands... was more pissed off at me because I wouldn't follow along and march with the bands down the street.
Fireworks he loves. We go every year to the Canada Day fire works and just sits there and goes ooo aaaa with me.. And points and says the colours he sees. Sometimes he's a little startled by them. But this is a kid who loves the Road Runner... but only when he falls off a cliff... | |
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| Autism Parents Posted: 6/16/2006 11:37:56 AM | ok heres the latest as to what my useless doctor told my ex at the docs yesterday... grumble grumble... ( who has no bedside manner with kids) ok about the potty issues.. now my son has to go for an ultrasound of his belly...get his blood tested for celiac disease ( my mom in law has it ) and he also needs a catscan for some god awful reason!!!!
but thats because for some odd reason my son has had lumps on the sides of his neck for about a year now... IMO.. i think its his nodes his health has been no prb but we want him to get EVERYTHING done at once. Now im in panic mode i hate seeing my baby restrianed at the docs i was bawling when he was chopped ( circum ) at newborn...
now about the sensory issues....in the report it says to wean him of it...and use a timer that allows him to learn to limit how long. I really dont like this idea...he knows to put it in his pocket put it on the counter ect. It really calms him down and he gets very anal when you take it away to the point of tears of threat of a hit.
As to public areas and niose...he has learned to cope..or to plug his ears. Parades fireworks festivals its a smorgasbord of info and stimuli for him. I know when hes gonna lose it when he plug his ears and shouts at ppl to shut up. By that time hes tired or hes not getting something he wants. At malls i let him push buttons or go see the pets as a reward for being good.
Know what?? for gods sakw i still have to keep him in a stroller or the cart...hes very good at holding my hand but something catches his attention....ZOOOMMMM hes gonso.... | |
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| Autism Parents Posted: 6/16/2006 1:48:58 PM | Hi, My son is 15 and considering Asbergers/ Autistic spectrum disorder. He has other diagnosis too. They change so often I don't care to list them. My son was mainstreamed until the 9th grade. Well needless to say he did not do well in High school. He was picked on so bad in Gym class and got his self into so much trouble because of it I had to sign him out. He was home school for the last two months with help from my district. It was very hard to find a special school for him. He is very smart and not very behind in school when it comes to learning. There are school for kids that are lower functioning Autism here in PA. Not many for the kids like Ky, my son. When I would talk to the school about wanting him in a special school, his social problems are not knew. They insisted the best place for him was mainstream. Anyway, I recently found him a Catholic school. He had an interview and tour and was accepted. I wanted to do a cartwheel down the hall. I know now he has a new start. In the mainstream school he had average grades with all his stuggles. I am praying he will flourish at his new school. I would be willing to be involved in a support network for kids with Autism. With all the recent diagnosis. I am sure there will be lots of people interested. Ky is involved with a volunteer peer group sponsored by Aboard (Advisory board on Autism and related disorders) here in Pa. I love it, he has friends there and we do fun things. Best part for me is to talk to others who have dealt with the same or similar things. I am very proud of Ky. He has a paper route and plays the guitar. Though he struggles in most social situatons. We take things one day at a time and seem to do fine. | |
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| Autism Parents Posted: 6/16/2006 1:59:34 PM | I am reading all the post and boy do I get it. My son as I said is 15. It is a bad time. He is easily angered . He loves most of the things boys his age do and is just as curious. His big problem is he has no concept of what is appropraite and inappropriate. I have tried everything. Still he talks about how the wrestlers were in Playboy to conservative family members. It is funny after words, during though very embarassing. I was wondering, well I am pretty sure. There are others with infatuations. My son was so hooked on telephones ans still is. Everyone says owe that could lead to a good career. It might if it doesn't drive me insane first, I'll be fine. | |
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| Autism Parents Posted: 6/16/2006 5:00:57 PM | Hey all,
I am a single mom of a creatively mischievious son (who has autism) who will be 4 in July.
He will be starting JK at KidsAbility in September and with speech and occupational therapy he has come ahead leaps and bounds from when he was first diagnosed.
As you know, having a child that looks "normal" but who is neurologically atypical can be hard to deal with when they act out in public (Torin acts out the most in the grocery store, which is why I only do groceries with him along if I have no other option.)
Toilet-training has finally been going well for the past while, though it's still in progress.
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