| Autism Parents
Posted: 6/16/2006 6:30:54 PM | speaking of potty-training.... my son never ever did take to the little kids potty. He HATED it! We tried and tried to potty-train him, to no avail. When HE decided he was ready, one day he crawled up on the 'big' toilet and peed. He's been potty-trained ever since, has never ever wet the bed. He's had a few accidents since starting kindergarte, and they always happen at school. His psychologist says it's because of all the stimuli and distractions. Perhaps. But a couple of months ago, we started doing something different.
About a 1/2 hour after each meal we made him sit on the toilet for about 10 mins, whether he did anything or not. 9 times out of 10, he pooped during his after-breakfast tiolet time. Almost like clockwork! Hence... no more accidents.
As for the noise of parades, fireworks, etc... we can't take my son to any parade, 4th of July (or any other) fireworks, the circus, etc... the noise is just too loud for him. The psychiatrist said that he is extremely sensitive to loud and sudden sounds, moreso than most other AS kids he's treated. So we have to stay away from things like that. At home, we can't play the tv loud, the volume on the stereo has to be low, he won't talk on the phone... something about the high frequency... can't run the hair dryer, vacuum cleaner, blender, hand mixer, or any other appliance that makes that kind of noise, when he's in the room.
Just something I hope he grows out of | |
|
| Autism Parents
Posted: 6/19/2006 2:47:05 PM | | I guess for me God had a plan - because I have a degree as a developmental care worker and I have worked with special needs children and adults since I was 12 years old. I have a son who is autistic as well. The best thing I ever did was to go off on my own and deal with him in a manner I felt appropriate. I found the more people who were involved, the more frustrated we would both get. I think a mothers intuition is a lot stronger than what any so called 'professional' can tell you. Sure take what they have to say but apply what you feel will work for you and your child - the results will be more positive. This is in any situation, everything from toilet training to speach to behaviour. Be strong and hold your ground when you know something is right for your family. | |
|
| Autism Parents
Posted: 6/19/2006 7:06:05 PM | | Does anyone have any really good tips for potty training? My son is non-verbal so he can't tell me if he has to go, and im not even sure if he feels it yet even though he's 5 now. so if any one can give me some "starter ideas" that would be great! Any little tips that worked for your child would be helpful. Thanx | |
|
| Autism Parents
Posted: 6/19/2006 7:46:59 PM | | My son also has sensory issues and it mostly has to do with loud noises also. To help my son handle this I carry ear plugs and an ipod with me at all times. If we are out watching fireworks, car shows, air shows, he wears the strongest ear plugs we can find which block out almost all noise. At movies, parades, plays, and circuses he wears noise reduction ear plugs. We also use an ipod a lot. Whenever we are in a crowded area with lots of talking, waiting in line or drs office, shopping with him in a cart, etc he can wear the ipod and listen to his music or recorded books. These little tricks have allowed him to better cope with the noise and the amount of people | |
|
| Autism Parents
Posted: 6/19/2006 11:56:31 PM | Sunnymommy:
I like the Ipod idea... And I don't want to sound like a Devils Advocate here... but are you sure it's helping him cope with the environment... or allowing him to escape from it, while still being there.
I think it's good you have a found a great portable, resuable, stress reliever. But are you sure he is still with you while it's all going on.. or is he escaping into his own environment more.
Again don't take this the wrong way here. I'm not trying to say what your doing is wrong, just remembering a few things from my Son's life. We did a similar thing with a simply walkman, and Muppet's Tape.
However it seemed to get to the point where he needed it to cope with with any environmnet outside the control of the home. More or less had to take a slight hard line approach to it.
Decided to switch the tape to classical, and at first he didn't want to listen to it.. and argued with me about it... And would go searching for the Muppets Tape... But then I had to teach him it was Mozart tape.. or no tape...
Well he doesn't like Classical.. so on his own he started to cope with situations a little more... Not saying this would work for you.. But we sometimes gotta remember our kids know how to play us.. and will.
We want them to normalize more and more.. and sometimes it takes a little tough love. I mean sometimes let the boundaries go a little further before offering the stress reliever to allow the horizon to expand a little furhter for him.
I'm no expert... but I have found myself more and more taking a standard parenting approach with my Son... and not coddling half as much as I used to... And as a result he is learning to do more with less... Not trying to say you are coddling.. but I think you get the jist of what I'm saying. | |
|
| Autism Parents
Posted: 6/20/2006 1:00:36 PM | | You can buy tapes with sounds of school/workplace/ outdoor noises on them to help the children get used to hearing them. They don't like it at first, but a good OT can help guide how to use them. They worked great! My son, now 9, has no problems going to the doctors, or to the mall as he has become used to the noises that will be present. Shopping, I get him to get what I want off the shelves, it gives him lots to do and makes him feel useful. We do have days where the strategies don't work of course, and we deal with that when it comes, but they are few and far between now. Gadget boxes are fabulous things to have with little toys/activities in them for car rides or long waits....not just for children with disabilities either. My eldest uses his MP3 when we go to the doctors, not for sensory issues but because he is bored and a teenager LOL. | |
|
| Autism Parents
Posted: 6/20/2006 4:41:00 PM | SpiderHam77:
I know what you mean. He is not coddled and he is treated just like any other kid. How many kids now days do you see with iPods, PSPs, Nintendos, or Walkmans wherever they go? I keep his time limited and he has to have them at an acceptable volume, which means he has to be able to hear us talk over the music or games. I feel that everyone should carry earplugs as hearing loss is now becoming way too common because we have grown used to louder and louder noises. My son is not allowed to hide from the world and attends regular summer camp and a school for children with behavior and emotional problems. | |
|
*Em*
|
Joined: 6/29/2005
Msg: 83 | |
| Autism Parents
Posted: 6/20/2006 6:04:46 PM | my son is 2 years old and is being assessed. tomorrow he will be assessed at pre-school.
anyway, he now has problems settling at night (its 2:04am), is petrified off baths (wont sit in one and screams when stood in one), when i sit on the loo-he insists i hold the toilet paper and if i dont he crys or shouts till i do, wont even acknowledge a potty and has always feared sudden loud noises.
as im relatively new to this can someone just tell me if he sounds autistic? he has problems with his social and communicative development and delayed speech. | |
|
| Autism Parents
Posted: 6/20/2006 6:30:41 PM | | hi autism parents, first my utmost respect to all of you! i had the blessing of being trained as an ABA therapist about 10 years ago. i haven't had the chance to use the training much as i live in the country. i do work as a nanny and the oldest child at work is a very high functioning aspergers child. about 2 1/2 years ago, i adopted 2 children of my own. we have been given every diognosis known to man. after some careful observation, i found my son exhibiting symptoms of PDD. we haven't gotten an official diognosis yet but i've found treating him as i would a PDD child gets results. my daughter has been diognosed with RAD which is misunderstood or not understood at all too. i love the story of the experience at the mall with security. i have to laugh since i can relate. my 11 yr. is homicidal and destructive so i call the police who in turn call childrens services.......ON ME FOR NEGLECT!!! am i the only one that feels our public service people should be educated on some of these disorders and their behaviors? had this officer known anythoing about RAD (reactive atachment disorder) he would have known that the presence of a social worker would make my daughter's problem sooooooo much worse! also, i don't like to give advice as it sometimes sounds condisending, but network people. you need all the support you can get. | |
|
| Autism Parents
Posted: 6/23/2006 8:54:55 PM | Relationships > Now or later?? Heartbreak either way??
Ok all parents, somebody else go to this post and clue the dolt who posted about autistic children in......... | |
|
| Autism Parents
Posted: 7/13/2006 1:41:27 PM | this poor thread has been abandoned 
spiderham....its me alura2.........yah yah i got tired of the old name...had it for 3 yrs...lets see i think its high time that us local parents need to get together for a few outings...a break...a chit chat...our kids to make some friends....
its very tough to talk to ppl who are sympathetic but honestly dont have a clue...this weekend is fairly busy but if anyone is up to it id love to maybe take the kids to a waterpark ( the weather is supposed to be nice ) ir maybe take a drive to cresent beach or whatnot..plz mail me or drop a note about this weekend ok??? Im getting tired of pacing the house on weekends...lol..... | |
|
| Autism Parents
Posted: 7/13/2006 7:53:03 PM | I have a 7 yrs old so who Is autism. He Is mentaly delayed too. His mentality Is at a 13 month old level for the past 3 yrs. He said 5 words at 1 1/2 yrs old. He said dad dad, mom-mom, more, up & Bye Bye. Then he stopped saying words. The potty training Is hard too. We found out when he was 2 yrs old. He showed signs before but we did not know. I only have the 1 so that Is good enough for me. He was on the waiting list for IBI & now they back down that rule that Is so  for sure. A year & 4 month later they take It away. My son fell 3 month short. He turned 6 then 3 month later they said, no more stopping at the ag3 of 6 yrs old. Now they are stopping It.  Now we might change Case Workers. To be a single parent for this Is hard for me. I have extra funding that allows workers or babysitters to come In at 15 or 10 $ an hour. Here It Is Access Better Living. Then Speical Needs Workers. Their Is also Hard To Serve too. Then now they are startig out with Red Cross. With my parents helping that Is good. With my ex out of this city that Is  for my son. It has been a year now so he Is getting used to It. He also wears braces too. He always walks on his tipi toes. I am sure other autism kids have this. Their Is lots with autism kids for sure. Then also some In wheel chairs, not good. We need to keep our chin up for them.    | |
|
| Autism Parents
Posted: 7/13/2006 8:38:08 PM | Oh I thought this thread was deleted due to inactivity... LOL... good to see it's still here. But yes I agree we local parents should get together and do something sometime. Could be fun.
My largest problem is finding people who are willing to learn. I try to explain to people that oyu don't need to be an expert to deal with him. You just need to understand he is not like other kids his age.
Some people get it... others... well they ca ngo suck a Lemon for all I care.... LOL
As far as this weekend goes... I'm going across the line to Birch Bay for the weekend. Going to the Slides... and then spending some relaxing time at the RV for the night. Well somewhat relaxing, that will depend on how tired I make Sean on Sat... LOL | |
|
| Autism Parents
Posted: 7/13/2006 9:28:19 PM | | One word of advice to parents of special needs kids - no one on the planet knows your kid better than you do - if something just doesn't feel right - doesn't suit you - your child or your lifestyle speak up and make it right for all of you!!! Just because someone has the title and a piece of paper to say they know better it's not always the case!!!! | |
|
| Autism Parents
Posted: 7/13/2006 10:17:18 PM | | my son is adhd i have younger adopted brothers and sisters who are my sons age who have so many disorders that i could not even list them all i have them everyday and i cant stand when people treat kids differently because they dont understand what that child or the parents go through i had a tball coach recently tell me that my son and sister did not deserve trophies because they were playing in the dirt people act like everything a child does is the parents fault and they dont care whta anyone else goes through i had a man tell me once my son would show manners and respect to him at all times or he would spank him because the only reason he behaved the way he did was because i did not dicipline him needless to say that was the last time we ever went out i dated someone else who said they did not want my brothers and sister around because they couldnt remember who had what wrong and could i please tell them again which one was mentally retarted i quickly responded and told him that he was mistaken it was not one of the children it was him it doent matter how hard you try if they are uncomfortable with the situation let them go because if they make you feel bad imagine how they are going to make your kids feel | |
|
cjl67
|
Joined: 7/13/2006
Msg: 91 | |
| Autism Parents
Posted: 7/14/2006 12:57:59 AM | | Hey to all.. I am a single mom of 2 kid's one is autistic.. I have been looking for a place to go and chat with other parents of autistic kids. My son will be 15 in september.. i look forward to talking with everyone... He is a very important part of my life also is my daughter(she is 16 soon to be 17 next month and pregnant) waiting to hear from ya'll.. also free to email me cjl6785atyahoodotcom. later everyone. Carla | |
|
| Autism Parents
Posted: 7/14/2006 9:14:39 AM | spider......lucky bum.....going to the waterslides....... sighhhh i guess ill do that next weekend.....my mum is booking an entire park on sunday for a huge realty party about 200 ppl or so...clowns bouncy castles ect...but its only for her clients and family..
thank god the weather will be good..so that will be my fun filled day. I know that bear creek park is releasing hundreds of ladybugs on saturday i dont know what time though..
now back to the topic......its nice and refreshing to talk to ppl who really understand...and say YES MY SON OR DAUGHTER DOES THAT TOO!!!!! try this...try that....i know....no kidding...it drives me crazy too...yup....giggle roll eyes ect...
the worst was when my son was about 3....and really didnt speak...he screamed or kicked or hit to get his point accross. To take him out to a restaurant?? PTTTTTTTTT good luck...i still did though...he would be great until his food was done and he got bored...he would get up and run acroos the bench...or lay on the floor in the aisle...or turn his head and bug the ppl behind us.They would simply shake thier heads and i know EXACTLY WHAT THEY ARE THINKING..HOLY SHIT WHAT A BRAT!!!!!
This behavior has realy diminished to very little now thank goodness | |
|
| Autism Parents
Posted: 7/14/2006 8:15:00 PM | hi im new to this site but Im amazed I was convinced I was the only single parent of an autistic child I hope this is also local in Las Vegas I wasnt sure but I wouls like to join this forum thanks... My son is 16  | |
|
| Autism Parents
Posted: 8/29/2006 10:28:28 PM | I too am fairly new to this site, and it is a weird kind of relif to see that I am not the only single parent with an autistic child. My son is 9, he was diagnosed at age 3. He has A-typical autism and profound mental disablities, he is essentially non-verbal, but is learning to communicate with pictures. Talon is very well behaved for an autistic child, understand everything that you say to him, and is very physically affectionate. All of this took years of "training" and reinforcement to accomplish, but as a result he is reasonable easy to care for,live with and work with. I know that that statement comes off as harsh but we all know how difficult children with this disability can be at times. I also have a developmentally normal daughter and we are a family, Talon's disibility is only part of our live, this is my feelings anyways, not our focus in life. My son's father has not seen him in 3years and has never paid any child support for him, and that's fine he doesn't deserve to know my son if that is how he feels. But that is enough from me for now, I any one wishes to please message me and we'll chat more.
Thank you for the great thread | |
|
| Autism Parents
Posted: 8/30/2006 12:44:25 PM | one more week until my son starts kindergarten... and im scared for him. He has PDD-NOS wich is on the autism spectrum. He also has extra sensory disorder as well. This makes it hard for him to adjust and he flies off the handle when overstimulated and he needs to hide.
Hes a niose seeker as long as hes in control of it.If someone lets say is banging a spoon or shaking rice in class he will scream at you and clap his ears and say SHUT UP!!! He has gotten sooooo much better this last year of preschool but what worries me is he had a one on one help teacher at preschool and im sick to know if he will have one at big school.
Now, i know there are about 2 others special needs kids in the same class so the chances are in our favor there will be a full time helper for all of them.ANother thing that worries a bit is my sons tioleting issues as well. He knows how to go...can wash up ect but still has bm problems at times. Hes on meds to help him control his tummy but its there before he realizes it.
This has been going on all summer us trying to help him get in control of his bms...but what will the school do in case of an accident??? im sooooo worried you have no idea... | |
|
| Autism Parents
Posted: 8/30/2006 5:30:34 PM | I thought this thread had Died... WooHoo... It's still alive.
Here is a question for you all. I just got off the phone from the School today discussing with the Principal about day 1. His suggestion was to keep my son out of school for the first day. As it's only 1 hour or something, and alot of transition into classrooms.
Has anyone else experienced this same situation? | |
|
| Autism Parents
Posted: 8/30/2006 5:35:10 PM | ^^^^^^ really??? hmmmm ......
i dont know..i will be going with my son to day one.. and staying with him to see how he adjusts.. | |
|
| Autism Parents
Posted: 8/30/2006 7:30:56 PM | ^^^^ and Spider
My son has been attending public school since he was 3 and we always keep him home the first day. It is just to much to ask of him, there is no routine and way to much activity. Talon loves school and can hardly wait to get back. | |
|
| Autism Parents
Posted: 8/31/2006 5:25:49 AM | | Keeping your young child home on the first day is a wise idea. The first day of school is always so unorganized, loud, and full of confusion. Kids on the spectrum really do not function well like that. The second day is usually how the rest of the school year will look, so they can easily go into routines. Good luck to all the parents sending their children off for the first time.....it really isn't that bad (my youngest goes into grade 4 in 5 days). | |
|
| Autism Parents
Posted: 8/31/2006 4:44:23 PM | | I am really nervous about my son starting JK - far more nervous than he seems to be... | |
|
Home
login 
