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Show ALL Forums  > Health Wellness  > Fibromyalgia...Who has it and what can you share?      Home login  
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 sammysalt1
Joined: 12/17/2005
Msg: 8
Fibromyalgia...Who has it and what can you share?Page 1 of 2    (1, 2)
Cut out your suger, and flour. for awile and see if you don't start feeling better. Good luck. I have it and have been med free for years after doing this. (((Talk to your doctor and see if it will work for you as well.))) I don't wake up in pain unless I eat flour, and suger. I had it bad, before I did this. Now you can't tell I have it at all. It can be controled, but you have to have the will power to contol what you eat.
 sammysalt1
Joined: 12/17/2005
Msg: 10
Fibromyalgia...Who has it and what can you share?
Posted: 1/17/2006 9:50:04 PM
Well you cut it all out, until you start feeling better, then add it back slowly until you start hurting again. Then you know your limit.

Are you able to do physical things like sports?

Well I don't do sports. (I shoot baskets.) I had two back operations. A lower disk. Good day I can do things. Like sometimes my husband does wood on the week ends. I help load and stack it. When he did logs. I help roll them big eight to ten foot long logs on the truck. (Just me and him.) What ever I want to do. (Because of my back. I sometimes over do it, and hurt the next day. But that isn't fibro. Thats just over doing it.)

I am human and times I eat reg, and put the weight back on, and here comes the swelling, and ect.... So then I go on that diet, and get all better again.
 rocknrollmunkey
Joined: 11/17/2005
Msg: 11
Fibromyalgia...Who has it and what can you share?
Posted: 1/17/2006 11:12:22 PM
Actually, there's no such thing as Fibromyalgia. A lot of doctors like to diagnose it cause they can't come up with anything different. I thought I had it to.

Cut out sugar and some starches and see what happens. It's a miracle.
 sammysalt1
Joined: 12/17/2005
Msg: 17
Fibromyalgia...Who has it and what can you share?
Posted: 1/21/2006 4:58:38 PM
indptwn- Don't laugh at the flour, and suger thing, it will help, if she has fibro. Everyone that has it that I know has tried it, and it has worked for them. Your mom might be the one it don't work on, who knows, but its important info to know. More than worth the try.
Fibro is very real, and the cutting out flour and suger keep it under control. It don't cure it. Because once you start to much with the flour and suger again, the signs will come back. If you don't want to belive it, then it only hurts maybe your mom. Its worth telling her about it. Check with her doctor before tring it. In case she has more stuff wrong with her.
 smileswithu
Joined: 2/12/2006
Msg: 24
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Fibromyalgia...Who has it and what can you share?
Posted: 2/19/2006 3:09:36 PM
Hey guys I'm new to this site so I hope I'm doing this correctly. I'm very lucky not to have Fibromyalgia but I work for a doctor who treats it. He's alternative so he's a firm believer in Vitamins and Supplements.
About 5 years ago RA showed up in my system and another doctor had told me to cut out Dairy, Wheat and Sugar. After three weeks it made a world of difference. The RA went from 21 to almost nothing on the lab results. (I think 60 is full blown Rhuematoid Arthritis) Several of my other labs were better in range than prior my lifestyle changes.

Giving these things up aren't as hard as it sounds, I use Rice Milk instead of Dairy. Spelt Flour, potato flour to name a couple in place of Wheat. Stevia and Xyitol in place of Equal, Splenda or Sweet n Low (which I never used before anyways). I make sure I take my Flax Seed Oil (my body thinks it's WD40) and Fish Oils as well as other vitamins. I don't live in an area where we have wonderful grocery stores such as Harry's Whole Food or Earth Fare, so sometimes it's hard for me to find organic / hormone free foods. If you can get them they will be better for you since you'll be cutting down on the toxins going into your body.

There is a DVD on Fibromyalgia out there and I'll try to get the name or website address for you guys. It's long and it's boring but it has a lot of great information. Such as ingredients in certain toothpaste can bother your fibromyalgia.

I wish you all Good Luck and keep up the GREAT work of sharing.
Smiles
 andiedandie
Joined: 9/24/2005
Msg: 27
Fibromyalgia...Who has it and what can you share?
Posted: 3/14/2006 1:08:56 AM
Hi Ladies & Gents.... my name is Andrea.... i was diagnosed with FM & ME( formally called CFS) in 2004...and have been living with it for probably about 10 years.

FYI... I am a volunteer for the MEFM society of BC.... I would suggest to you all that you go to Canada's national website for the latest research and treatments of these conditions. The website: www.mefmaction.net also offers helpful informations & pain management suggestios etc.

Dr Bruce Carruthers, in Lower Mainland of BC is probably the leading doctor in all of Canada for diagnosing, treating and helping his patients modify their lives in order to mange these chronic pain conditions. Dr. Carruthers has written and published with addtional doctors from Canada, Belgium and some others (from various countries) the new consensus documents for FM & ME. He and his team of doctors have been travelling internationally to educate other physicans & specialist on new research findings. These medical books have been published & are avaliable through Hayworth Press... you can view online the original consensus documents and/or the new revised edtion a "coles notes" version for Physicians at the mefmaction.net website. Also there is a female Doctor in the Toronto area, that helped contribute information/research and worked colaberatively with Dr. Carruthers. View the documents section to access all the above information...including medications to take..how to diagnose, types of pain management...and on and on.... very useful tool for a patient, family member of family physican to have!! Check it out... & Be well!!

PS..if you're intereseted...I've posted various things about FM & ME in the last few weeks...view my profile to see postings!! The more knowledge we gain..the healthier we will be!!
 marita_b
Joined: 6/15/2005
Msg: 29
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Fibromyalgia...Who has it and what can you share?
Posted: 10/18/2006 6:38:52 AM
this short cut get's you to another forum and the 3 pages there also have great information on them you all might get some use of,....

http://forums.plentyoffish.com/2147319datingPostpage3.aspx

I just have one thing to mention that has occurred to me recently,....
I was diagnosed about 6 months ago and suffering for a couple of decades,....
and am in the process of regulating, symptoms via chemistry and therapy,....
of which I highly advocate hydrotherapy,....especially an in hospital therapy where the pool is bathwater hot,...God I love that

with the diagnosis came some medications/trerapy which actually have given me an occasional day that hasn't been all that bad,..and I found myself not allowing myself to enjoy and celebrate those rare good days,....after some intensive introspection I realized that I felt guilty for them,....after all how can you be disabled and actually feel good now and then????

After talking it out with a health proffesional,...I learned that I am not alone in this thinking,...either,....apparently this is one of the few things I have that's normal,...

hey,...who'da thunk it eh?
 marita_b
Joined: 6/15/2005
Msg: 31
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Fibromyalgia...Who has it and what can you share?
Posted: 10/19/2006 5:06:10 AM
and if you don't want to go out and get her book,....then I recommend her web site,....

It is widely agreed that Dr Devlin Starlanyl is the leading authority,...her website is also used by many physicians and specialists in the field for guidance and the latest updated information for their patients,.....

http://www.sover.net/~devstar/index.htm

it was the site I passed onto my physician and which she now uses regularly not just for me her first diagnosed patient but for several others she has diagnosed fibromialgic after consulting this site,....

Because as we all know the major hurdle is getting the diagnosis confirmed,....something that can take (as in my case) several decades,....
 marita_b
Joined: 6/15/2005
Msg: 39
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Fibromyalgia...Who has it and what can you share?
Posted: 10/25/2006 4:25:33 AM
You then can buy some red pepper cream at the store, called Zostrix or Capzasin-P, which has capsaicin in it (red pepper) to apply to the rash. Or you can mix red pepper powder(cayenne) to a hand lotion until it turns pink, then apply to the rash. Make sure you wash your hands well afterward and do NOT touch your eye area.
--------------------------------------------------------------------------------------------------------

These creams are meant for sore muscles,...applying them to a rash,...can have the same effect as applying acid to a burn,....not something I recommend especially since many people are super sensitive to this stuff, by that I mean allergic,...

I have had shingles in my face something NEVER to mess with or treat on your own (especially if it's in your face) but to get theyself to a doctor because you can end up with some serious side effects if you don't,....this is the same base product used to make pepper spray,....and if you have ever been exposed to this,...you will know why it can and does bring the biggest to their knees screaming in pain,....

Since I am allergic to Zostrix or Capzasin-P,...having discoverd this after applying it to a good portion of my body,...I can tell you another thing,...once applied it almost has to wear off because washing, scrubbing with soap and water doesn't seem to do anything but make it worse,.....try it on a very,...very small spot first if you are going to use it,.....trust me on this one,...and anytime you apply it to a body part that is normally touching other body parts as in arm to arm,....any small amount of friction sets it off again and again,...so caution is the way to go,....

It is correct however that being tired gives the virus something to overpower easily and lack of sleep is the best way to invite a flare up,....

there are non medicinal things you can do to help yourself and this web site can help you,..by teaching you self hypnosis,...to teach you how to relax and wind yourself down so you can sleep,.... http://www.bcx.net/hypnosis/induct.htm

You can also get tapes at the book store or library,...and there are virtually no bad side effects,....

I also recomend feedback to your health care provider,...if your meds aren't working try something else there are plenty for them to try until they find the ones that are right to you,...just don't take something for weeks and weeks that frustrate you and don't do what they promissed,....and as always keep as detailed a record as possible of what you took how it made you feel,..or not feel when the onset of changes etc,..so you don't have to remember anything when you see your doctor,.....

If you go the route of self medicating with herbs and over the counter suppliments same rule applies keep a record,...that way you know for sure,....what helps and what makes things worse,....

as for palpitations,...I too have had this almost daily and something I called fright which is a something that used to happen just as I was almost asleep,....a sort of body muscle contraction which is something I also felt while driving a car and had a near miss, or something I have seen my babies do as they are asleep when they all of a sudden jerk their arms and legs as if they are bracing themselves from a fall....I also have a very healthy and indeed very normal heart,..so the one doesn't necessarily presume the other,....

Because this disorder has so many different signs and symptoms it also has a multitude of "cures",....and there is nothing wrong in trying something new,...just do it with caustion because just like the disorder,...every person is different in how they react to different things,....what might help one,...or even ten might not help you,..and what helps you might do nothing what so ever for someone else,.....

this site is one of the best sites for Fibro information,...it in fact is used by physicians to teach them what to do to help their patients,...

http://www.sover.net/~devstar/index.htm
 marita_b
Joined: 6/15/2005
Msg: 42
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Fibromyalgia...Who has it and what can you share?
Posted: 10/26/2006 5:24:55 AM
the very nature of being a fibro patient makes you a guinnea pig,...b ecause there is no one thing covers all,...the only way to help yourself is to be vocal and if something isn't working for you,...you have to try something else and keep trying untill the right combination is found,..FOR YOU,...

That may suck,..but it is what it is,....the nature of the beast,...

and here is something else to know,....a formular that works for a time might not work if your symptoms change,....so one magic formular might not be a panasea at all times for all things,...

There is no other disorder that is so much work and requires so much attention,...not to mention flexibility from your heath care provider,....it wears them down as much as us sometimes I think,....
 marita_b
Joined: 6/15/2005
Msg: 43
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Fibromyalgia...Who has it and what can you share?
Posted: 10/26/2006 6:02:40 AM
I just saw an add for this and although I know absolutely nothing more than what it says in it's add,...it is interesting to note that this apparently is also for use of shingles pain and fibro pain,....It may be worth checking out,....it is a natural pain relief medication available over the counter,...at pharmacies called neuragen,....

http://www.originbiomed.com/pages/neuragen_home.html?gclid=CN-li4fnlogCFRnQSAodvS7nBA
 marita_b
Joined: 6/15/2005
Msg: 45
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Fibromyalgia...Who has it and what can you share?
Posted: 10/26/2006 12:25:05 PM
increacing bloodflow is the last thing you want with a migraine,....

but not all headaces are migraines,...I myself have migrains,..tension headaches and cluster headaces which is a combination of more than one type,.....
*****************************************************
Migraine headache - Oppressive pain usually on one side of the head only. Often accompanied by nausea, vomiting and vision problems. Causes: hereditary factors, food reactions, allergies, hormone imbalances, low blood sugar, pH imbalances, expanded blood vessels, and psychological overload.
*****************************************************
the above came from,...http://www.ritberger.com/headaches.html

as you can see migrain can be caused by expanded blood vessels,...however tension headaches from constriction of them,....first you have to be sure what you have,.and why you have it,..then you can help yourself,....(for example I am hypersensitive to high low weather changes,....so for me when it rains,...life sucks),.....but sometimes self medicating even with cremes and potions can make things worse,....if you are not certain,....

The longest uninterrupted migrain I ever had,...lasted a bit over 6 and a half weeks,....so I have some first hand knowledge with both the migrain and the cures,....

now for a bruise which is basically a burst blood vessel under the skin,....I don't know what increasing the blood flow might do for one but if it works,...then who am I to argue, with success,......

just remember to make sure your main health care provider is also aware of all the over the counter stuff you are using,...because some of this can also interact badly with prescription meds you might also be on,.....(better safe than more sorry,...

there are 4 more pages of other's with advice and experiences,...on this forum

http://forums.plentyoffish.com/datingPosts2147319.aspx


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